Jump to content
  • Most publications are free to download or can be purchased in a hospital pack from the online shop.  You can help support the charity and development of new publications for those with Addison's disease by making a donation now.

Newsletters (members only)

Member-only newsletters published quarterly with features and articles about living with Addison's and group news.

65 files

  1. Free

    ADSHG Magazine - Winter 2021

    Welcome to the Winter edition of the ADSHG magazine. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s and adrenal insufficiency community.
     
    In this edition:

    Page 2.    Editor’s note/Deana

    Page 3 & 17. Confused about drug shortages?

    Page 4/5.  COVID-19 Update

    Page 6/7.  HSJ Awards

    Page 8/9.  Feelings about COVID freedoms

    Page 10.  Children and Young Adults: Meet Becca

    Page 11.  Ireland update

    Page 12/13.  Ambulance update

    Page 13.  Paramedic Zooms

    Page 14   Drug news: Fludrocortisone

    Page 15.  Drug news: NICE guidelines

    Page 15. European Adrenal Network Conference

    Page 16. Bringing down generic drug prices

    Page 18/19.  Personal Experience: Ali’s story

    Page 20/21. Personal Experience: Lynsey’s story

    Page 22. Meet the Trustee: Philip Kaye

    Page 22/23. ADSHG research update

    Page 24/25. Research surveys

    Page 26.  SfE BES Conference

    Page 27. Annette Louise Seal Memorial Award

    Page 28/29.  Funding special: London Marathon

    Page 30/31.  Funding special: Great South Run

    Page 32/33.  Funding special: Thank Yous

    Page 34. Social meetings: Updates

    Page 35. Fundraising: Donate while you shop

    Page 35. Gifts and Wills

    Page 36/37. Meet the Christmas Card Designers

    Page 38. Addison’s admin!

    Page 39.  #ShareYourKit

    Page 40.  View from our Treasurer

    Page 40. Message from our Chair

    Page 41 . Future Trustees

    Page 42.  Meet the Designer: Charlotte

    Page 43. The A team: Who’s who in the ADSHG

    325 downloads

    Updated

  2. Free

    ADSHG Magazine - Summer 2021

    Welcome to the Summer edition of the ADSHG magazine. We are very lucky to have to all our amazing volunteers who've worked tirelessly in this time of COVID-19 to support and promote the ADSHG. In conjunction with our website and social media platforms our magazine aims to keep you up-to-date with the latest news and developments from across the Addison’s community.

    TABLE OF CONTENTS
     
    Page 2 A note from the editors and Deana

    Page 3  Meet the trustee: Robert McClements

    Page 4 A message from our chair/Treasurer update

    Page 5 AGM 2021

    Page 6 Caring and grieving with Addison’s

    Page 7 Stress dosing

    Page 7 Coronavirus update

    Page 8/9 Adams story: the AI warrior

    Page 10 Meet Becca

    Page 11 Ireland update

    Page 12 Ambulance update

    Page 13 Paramedic training

    Page 14 Drug news: Chronocort

    Page 15 Drug news: Fludrocortisone

    Page 15 Policy news: UK Rare Diseases Framework

    Page 17/18 CoMICs

    Page 19/20 Ensuring sufficiency in Addison’s

    Page 21/22 Addison’s Q&A: Why salt?

    Page 23/24 ADSHG research update

    Page 25/26 Addison’s Disease Day 2021

    Page 27 Medical Conferences: eECE2021

    Page 28 Social meetings update

    Page 29/30 Billie’s 100 flights for Addison’s

    Page 31 London marathon runners 2021

    Page 32/33 Fundraising: Thank you’s

    Page 34 Leaving a legacy

    Page 34 Donate while you shop

    Page 35/36 ADSHG published in GP Pulse magazine

    Page 37/38 Addison’s admin

    Page 39/40 Rare Disease Day 2021 roundup

    Page 41 Famous lives: Saint Elizabeth of the Trinity

    Page 42 Meet the designer: Molly Clair Design

    Page 43 The A team: Who’s who in the ADSHG

    366 downloads

    Updated

  3. Free

    ADSHG Newsletter 138 - Winter 2020

    Welcome to the Winter edition of the ADSHG newsletter. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s community.
     
    In this edition:
     
    Page 2. Editor’s note / Coronavirus update

    Page 3. Introduction to new Digital Communications and Engagement Officer

    Page 3. Meet the trustees

    Page 4. A message from our chair / Treasurer update

    Page 5. Creating an online video on staying safe during COVID-19

    Page 6. Get your flu jab early

    Page 7. Walking, life and Addison’s

    Page 9. A thank you from the Brazilian Addison’s Association

    Page 10. Julie’s ambulance update / Christmas card winners

    Page 11. CMA investigation into fludrocortisone pricing in 2016 – an update

    Page 11. ADSHG FORUM - Women’s Health

    Page 12. ADSHG FORUM - Up-dosing for premenstrual symptoms (PMS)

    Page 12. ADSHG FORUM - Pregnancy and Addison’s disease

    Page 13. ADSHG FORUM - Managing the menopause

    Page 14. ADSHG FORUM - Menopause and bone density

    Page 16. My perspective: learning to be prepared

    Page 17. My perspective: managing Addison’s on holiday

    Page 18. & 19 Social meetings / Recent donors

    Page 20. & 21 Fundraising

    Page 22. Leaving a legacy / Amazon Smile charity ID

    Page 23. Be prepared, stay safe

    Page 24. - 26 Spotlight on social media

    Page 27. The ADSHG team who’s who

    468 downloads

    Submitted

  4. Free

    ADSHG Magazine 137 - Summer 2020

    Welcome to the Summer edition of the ADSHG newsletter. We are very lucky to have to all our amazing volunteers who've worked tirelessly in this time of COVID-19 to support and promote the ADSHG. In conjunction with our website and social media platforms our magazine aims to keep you up-to-date with the latest news and developments from across the Addison’s community. 
     
     
    Page 2 A note from the Editor / Coronavirus Update

    Page 3 Trustees Tribute / Introduction to New Trustees

    Page 4 Introduction to New Trustees

    Page 5 Introducing the new Operations Manager

    Page 6 Report from the AGM

    Page 7 View from our Treasurer / A message from our Chair

    Page 8 Meet the Trustees: Dom Hargreaves / Ambulance Update

    Page 9 Research study update

    Page 10 Volunteers need / Addison’s Ireland / CMA judgement on Fludrocortisone pricing

    Page 11 Your wellbeing - Making life choices

    Page 12 Your wellbeing - Diet for life

    Page 13 Your wellbeing - Holidaying in isolation

    Page 14 Your wellbeing - Walking your way to good health / Music

    Page 15 My perspective: Lockdown

    Page 15 - 18 Events Calendar / Onloine social broadcast

    Page 19 & 20 Recent donors / Fundraising

    21 - 23 Spotlight on Social Media

    24 The ADSHG Team who’s who
     

    354 downloads

    Updated

  5. Free

    ADSHG Newsletter 136 - Winter 2019

    Welcome to the Winter edition of the ADSHG newsletter. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s community.
    In this edition:
     
    Page 2  A Note from the Editors & Message from the Chair

    Page 3  AGM

    Page 4  Trustees Tribute

    Page 5  Meet the Trustees - Lisa Shepherd

    Page 6 Interim Operations Manager and a View from our Treasurer

    Page 7 Addison’s Ireland

    Page 8 Julies Ambulance Awareness, Call for Volunteers

    Page 9 Stress and Addison’s, Stress Breathing

    Page 10 & 11 Continuous Subcutaneous Hydrocortisone Infusions

    Page 12 - 15 My perspective – Stories from the community

    Page 16 & 17 Events Calendar

    Page 8 & 19 Donations and Fundraising

    Page 20 Spotlight on Social Media

    Page 21 New website

    Page 22 Research Matters

    Page 23 The ADSHG Team and Trustees
     

    87 downloads

    Updated

  6. Free

    ADSHG Newsletter 135 - Spring 2019

    Welcome to the Spring edition of the ADSHG newsletter. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s community.
     
    Behind the scenes the ADSHG has been working hard to gain a better understanding of the challenges members sometimes face in gaining safe, effective care. As a result, we are delighted to introduce new member benefits in this edition and some changes in how the ADSHG operates.
     
    In this edition:
     
    Page 2 A note from the Editor
    Introduction to members of the ADSHG team

    Page 3 ADSHG – The community you belong to

    Page 4 Update from the CEO

    Page 5 Announcing Addison’s Friends
    Message from the Chair

    Page 6 View from our Treasurer
    Meet the Trustees – Stuart Pinkerton

    Page 7 Julie’s ambulance awareness update

    Page 8 Paramedic training

    Page 9 Shipments and Ports

    Page 10 Research Matters

    Page 12 The importance of diurnal rhythm

    Page 13 A patient’s experience with circadian dosing

    Page 14 My perspective
    Update from Addison’s Ireland

    Page 15 Membership and Subscriptions

    Page 16 Social meetings

    Page 18 Donations and Fundraising

    Page 20 Tweet chat

    Page 22 Facing Addison’s – Telling our stories

    Page 23 The ADSHG team

    504 downloads

    Updated

  7. Free

    ADSHG Newsletter 134 - December 2018

    Addison's Disease Self-Help Group Newsletter 134, December 2018
     
    Our latest members' newsletter is available for download. It's 24 pages packed with news, views and advice from the Addison's community - to the Addison's community.
     
    Page 2 : Introduction to the Social Media Team
    A note from the Editor
     
    Page 3 : Hello, my name is...
    Chris Pointon explains how his wife's experiences of palliative care drove this initiative
     
    Page 4 : Introduction to the new CEO
    Message from the Chair, Andrew Glass MBE
     
    Page 5 : Report from the Guest Speaker at the AGM, June 2018
    Professor Rob Murray's talk about EU AIR (EU Adrenal Insufficiency Register)
    Newsletter front covers
     
    Page 6 : View from our treasurer
    An update on our conversion to CIO (Charitable Incorporated Organisation)
     
    Page 7 : Fundraising update - supprt from Google, Iomart and SM&B
    Meet the trustees
    Congratulations to Prof Wiebke Arlt
     
    Page 8 : Emergency injection training
    Julie's ambulance awareness update
    Royal Free patient group
     
    Page 9 : Minutes of SGM, November 2018
     
    Page 10 : Addison's Ireland update
    Press releases
     
    Page 11 : Volunteers wanted
    Medical research grants
     
    Page 12 : Ask the experts
     
    Page 13 : Pump problems
     
    Page 14 : Stories from the Addison's community
     
    Page 15 : Great Scottish Swim
    Adrenaline junkie?
     
    Pages 16 & 17 & 18: Donations & fundraising
     
    Pages 19 & 20 : Event calendar
     
    Page 21 : 2019 subscriptions
     
    Pages 22 & 23 : Spotlight on social media
     
    Page 24 : Back cover
    Christmas card 2019 competition
    Contents and contact details
     

    623 downloads

    Updated

  8. Free

    ADSHG Newsletter 133 – September 2018

    Addison's Disease Self-Help Group newsletter, issue 133, September 2018
     
    Welcome to the autumn 2018 edition of the ADSHG newsletter, with a refreshed, modern design. This new-look edition gives details of the forthcoming Special General Meeting and medical seminar, with messages from our Founder, the new Chair and the Treasurer. This issue also includes information on the prices of generic medicines and updates from ADSHG medical grant recipients. Additionally, Jane Hodgkins offers members helpful advice on how to reduce psychological stress and we report on ambulance awareness, fundraising events and social meetings.
     
    Please note on page 6 of the online newsletter, we have included a clarification note from the Editor that is not available in the print copy: This article was contributed by Phillip Yeoh, who is one of our Trustees. The article should not be taken as medical advice, nor should it be taken as an endorsement by ADSHG for The London Clinic above other medical options open to readers.
     
    This issue of the newsletter also contains the 2018 Christmas catalogue order form insert (included as an extra download file here), highlighting items and special offers available to purchase from our online Shop.
     
    Page 2: Special General Meeting and medical seminar
    Editor's letter
     
    Page 3: Letter from our Founder
    Deana's last column as President
     
    Page 4: Message from the Chair
    ADSHG transformation programme
     
    Page 5: View from our Treasurer
    Introduction to the editorial design team
     
    Pages 6-7: An endocrine nurse specialist’s experience
    Starting a continuous hydrocortisone infusion pump service in my clinic
    Patients’ experience with the hydrocortisone pump
     
    Page 8: Meet the Trustees - Andrew Glass
    Volunteering time to help the ADSHG
    Generic research - give blood
     
    Page 9: Ambulance awareness
    Copycat ambo services - state of flux on ambulance scene
    Participation in the ULTRADIAN study
     
    Page 10: Report on the third joint meeting of Addison’s Disease European Patients’ Organisations
    Call for volunteer speakers
    Renew your Medic Exempt card
     
    Page 11: Coping with psychological stress
    Jane Hodgkin provides advice on how to reduce psychological stress
     
    Pages 12-13: ADSHG grant recipient reports
    Three Award recipients provide an update on their areas of research
     
    Pages 14-16: My perspective - stories from the Addison’s community
    Check that prescription!
    Run, Jennifer. Run!
    A medical emergency and my hospital stay
    An apple a day...
     
    Page 17: IT@ADSHG
    Engagement of IT partner to facilitate core IT support
    Christmas 2018 special offers from the online Shop
     
    Pages 18-19: Fundraising stories
    Cuppa and cake at Caernarfon
    Sam's Fundraiser Day
    Featherstone Kickboxing Club
     
    Pages 20-21: Ask the expert - The prices of generic medicines
    Hydrocortisone prices at last coming down, but we need more help from you
     
    Pages 22-23: Socials@Addisons
    Event calendar
    Social meetings and reports 
    Volunteers needed for endocrine conferences 2018
     
    Page 24: The back page
    Subscription rates 2019
    Reminders 
    ADSHG Trustees, officers and volunteers

    532 downloads

    Updated

  9. Free

    ADSHG Newsletter 132 – June 2018

    Addison's Disease Self-Help Group newsletter, issue 132, June 2018
     
    Welcome to the summer 2018 edition of the ADSHG newsletter. This issue has a special travel and holidays feature with lots of helpful tips and reminders for making the most of your holidays, including guidance about the EHIC. Friends and ADSHG members pay tribute to former trustee Sue Chambers, who sadly ended her struggle with leukemia at Easter. Following the introduction of the GDPR in May, learn how we are protecting your data and how you can check and update your accounts details online. Additionally, we report on Addison's Ireland, fundraising events, social meetings and ambulance awareness.
     
    Page 1: High days & holidays
    New British 10mg hydrocortisone supplier
    Run for Addison's in the Great South Run 2018
     
    Page 2: From the President
    AGM and medical lecture
     
    Page 3: Recent news
    A tribute to Sue Chambers
     
    Page 4: Brexit briefing
    Enjoy the EHIC while it lasts
    EMA reassigns all UK contracts
     
    Pages 5-7: Travel and holidays
    Tips & reminders for making the most of the holidays
    Lanzarote swings and roundabouts
    An unexpected sting in Corfu
    Seeing the world with Addison’s
     
    Pages 8-9: Ambulance awareness
    Speaking from the heart - a talk with Liverpool student paramedics
    Bristol student paramedic conference
    Julie’s ambulance awareness update
     
    Page 10: Ireland update
    Working with the Addison's Ireland clinical panel
    Help wanted at the autumn meeting
    Still time to add your voice
     
    Pages 11-13: Around the group
    About the money
    Complete your ADSHG member survey
    Lumpy Lane - a recipe from Sue Chambers
    Wibbly wobbly webby - protecting your data & privacy under GDPR
    How to check your ADSHG account details online
     
    Pages 13-14: Fundraising roundup
    Garstang Gallop
    Fundraising Fridays on social media
    Rare Diseases Day in-store fundraiser
    Twin bake sale
    Phoenix dinner dance
     
    Pages 14-15: Social corner
    A piece of cake - thoughts on getting involved with social meetings
    Social news and reports 
    Social and medical meetings 2018
     
    Page 16: The back page
    Reminders
    2018 subscription rates
    Help needed for Endocrine conferences 2018
    ADSHG trustees and officers

    706 downloads

    Updated

  10. Free

    ADSHG Newsletter 131 – March 2018

    Addison's Disease Self-Help Group newsletter, issue 131, March 2018
     
    Welcome to the spring 2018 edition of the ADSHG newsletter. This issue contains exciting drug news on a new hydrocortisone formulation for children and a comprehensive Brexit update. Whether you are looking to get fit or already participating in a sport, Dr Rob Andrews offers lots of instructive advice about staying on top of an exercise programme with Addison's, while Jane Hodgkin reveals how words and phrases we use influence our moods and outlook. Recent medical research news, an ambulance update, fundraising stories, a website browsing guide and news on upcoming meetings complete this informative spring edition.
     
    Page 1: Spring is in the air
    Complete the ADSHG member survey!
    Great South Run 2018
     
    Page 2: From the President
    About the money
    Interested in becoming a trustee?
     
    Page 3: Recent drug news
    Diurnal’s Alkindi gets the go-ahead
    Emergency supply from community pharmacies
     
    Page 4: Brexit briefing
    Prepare for the worst: hope for the best
     
    Page 5: Adrenal medicines 
    Adrenal medicines in the UK and Ireland
    European Medicines Agency prepares to leave
     
    Page 6: Recent medical research
    Infectious causes of Addison’s
    Swedish patients with Autoimmune Addison’s are not overweight
     
    Page 7: Life skills
    Words for feeling better or worse
    Register with your ambulance trust
     
    Page 8: Ambulance update
    Turbulence on the ambulance scene
    A Christmas shopping surprise
     
    Page 9-11: Exercise and Addison's
    Bangkok Bulletin of teeth brushing and 750km
    Rare Diseases Day Tweet chat
    Powered by Krispy Kremes
    Staying on top of an exercise programme with Addison’s
     
    Page 12: Around the group
    Wibbly wobbly webby
     
    Page 12-13: Fundraising
    A guide for new hosts holding an Addison’s social meeting
    Fundraising stories
    Tuna bake recipe
     
    Page 14-15: Social update
    Meeting reports
    School charity events
    2018 social and medical meetings
     
    Page 16: The back page
    Reminders 
    2018 subscription rates
    Endocrine conferences 2018

    685 downloads

    Updated

  11. Free

    ADSHG Newsletter 130 - December 2017

    Addison's Disease Self Help Group newsletter, issue 130, December 2017
     
    Welcome to the winter 2017 edition of the ADSHG newsletter. This issue is bursting at the seams with news - essential drug updates, work on ambulance awareness and conference reports from members, as well as members' personal stories, fundraising updates and meeting dates. 
     
    We wish all our members a very Happy Christmas and a healthy New Year!
     
    Page 1: Happy New Year 2018, everyone!
    2018 subscription rise
    Online adrenal questionnaire now live
     
    Page 2: From the President
    About the money
     
    Page 3-4: Recent news
    New ambulance guidelines on adrenal crisis
    Julie's ambo update: moving the goalposts?
     
    Page 5-6: Drug news
    New shortage of liquid injectable hydrocortisone
    Chronocort update: cortisol replacement
     
    Page 7-9: Awareness update
    Exeter workshop on hormone dynamics
    CMA decision on unfair drug pricing
    ADSHG at the medical conferences
    ADSHG nursing prize awarded to ADSHG trustee!
     
    Page 10: Around the group
    ADSHG submission to Health Committee on Brexit - medicines
    Wibbly wobbly webby
     
    Page 10-12: Personal stories
    Living with a cortisol alert dog
    66 years with Addison's
    Romance is not just for the young
     
    Page 13: Fundraising update
    Cookery book launch
    Runners' personal bests!
     
    Page 14-15: Social update 
    Gill's goodbye column
    Meeting reports
    2018 social and medical meetings
    2018 fundraising events
     
    Page 16: The back page
    Reminders
    Conference dates
    2018 subscription rates
    ADSHG trustees and officers

    634 downloads

    Updated

  12. Free

    ADSHG Newsletter 129 - September 2017

    Addison’s Disease Self Help Group newsletter, issue 129, September 2017
     
    Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website.
     
    This issue of the newsletter also contains the 2017 Christmas catalogue order form insert (included as an extra download file here), highlighting items – including those all-important stocking fillers – available to purchase from our online shop.

    Page 1: Hot news from the kitchen
    Christmas catalogue 2017
    Don’t forget your flu vaccine
     
    Page 2: From the President
    About the money
     
    Page 3: Sue’s cookbook
     
    Page 4: Brexit update
    Customs uncertainty: possible drug supply disruptions
     
    Page 5-6: ADSHG and UK news
    Repeat prescription length and reserve supply
    Winter flu vaccine reminder
    Medical research grant report: uncovering biomarkers for steroid-dependent patients
    Fludrocortisone price hike causes hardship for dog owners
    Natural killer cells and Addison’s
     
    Page 7: Around the group
    Talking to Sheffield medical students
    Injectable hydrocortisone in Ireland
    Price watch
     
    Pages 8-10: AGM report
    Personal impressions from a volunteer
    Finance report
    Social media report
    Minutes of the 2017 AGM 
     
    Page 11: Ambulance awareness
    Ambo update: get yourself registered!
    East of England ambulance to the rescue
    Spotlight on Living Well
     
    Page 12: Personal experience
    Molly’s mind -  blogging my way through life
     
    Page 13: Fundraising update
    Donations report
     
    Page 14-15: Social update
    Gill’s social corner
    2017/8 social and medical meetings
     
    Page 16: The back page
    Reminders
    Conference dates
    2018 subscription rates
    ADSHG trustees and officers
     

    648 downloads

    Updated

  13. Free

    ADSHG Newsletter 128 - June 2017

    Addison's Disease Self Help Group newsletter, issue 128, June 2017
     
    Welcome to the summer 2017 edition of the ADSHG newsletter. This issue reports promising developments towards the new Zeneo autoinject device. We have more positive news on A&E awareness in Ireland and a report from Dr Anna Mitchell on her ongoing genetic analyses. In addition, we focus on the website updates to Living well and the launch of our injection videos on YouTube.
     
    In this issue
     
    Page 1: Planning your summer get-away?
    AGM and medical lecture tickets
     
    Page 2: From the President
    About the money
     
    Page 3–4: Recent drug news
    Latest news on the Zeneo needle-free auto-injection device
    Infacort update
    Brexit and the dispute over the European Medicines Agency relocation
     
    Page 5–6: ADSHG news
    Addison’s Ireland progresses A&E awareness
    Society for Endocrinology conference
    Grant for uncovering more about the genetic susceptibility of autoimmune Addison’s
    Updated surgical guidelines
     
    Page 7: Ambulance scene
    Have you seen the ambulance Forum makeover?
    North West ambulance to the rescue
    Registering with your local ambulance trust
     
    Page 8: Website news
    Spotlight on updates to Living well, Ambulance and A&E forums and YouTube injection video launch
     
    Page 9–10
    Help with applying to university and support available through the Disability Living Allowance
     
    Page 11–12: Personal stories
    Ibiza eye-opener
    Injection video saves the day in Zurich
    Food poisoning risk from broken salad leaves
     
    Page 13: Fundraising update
    Pub quiz night
    Donations report
     
    Page 14–15: Social update
    Gill’s social corner
    2017 social and medical meeting
     
    Page 16: The back page
    Reminders
    2017 subscriptions
    ADSHG trustees and officers

    623 downloads

    Updated

  14. Free

    ADSHG Newsletter 127 - March 2017

    Addison's Disease Self Help Group newsletter, issue 127, March 2017
     
    Welcome to the March 2017 edition of the ADSHG newsletter. This issue has exciting news about drug developments on the horizon for this year as well as discussing the potential impacts of Brexit on patients. Additionally, we look at our Group's ongoing efforts to build positive diaglogue with medics in the UK and Ireland and focus on our new website updates.
     
    In this issue:
     
    Page 1: Get running
    AGM medical lectures and tickets
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent drug news
    New needle-free injection device in the pipeline
    Infacort update
    Brexit and European Medicines Agency
    Future access to orphan drugs
     
    Pages 5-6: Ambulance scene
    Ambulance regulator invites our input
    Nursing and medical staff shortages set to increase
    What's new on the ambulance scene?
     
    Pages 6-7: Recent news
    New website tasting menu and new Living Well dishes to try
    British Society for Paediatric Endocrinology annual conference
     
    Pages 8-10: Features
    Coping with ... your GP practice
    Famous lives: Saint Elizabeth of the Trinity
     
    Pages 11-12: Personal stories
    Office first aid: ADSHG videos to the resuce
    Bootneck recovery
    Windermere cold plunge
     
    Page 13: Fundraising update
     
    Pages 14-15: Social update
    Gill's social corner
    2017 social and medical meetings
     
    Page 16: The back page
    Reminders
    2017 subscriptions

    637 downloads

    Submitted

  15. Free

    ADSHG Newsletter 126 - December 2016

    Addison's Disease Self Help Group newsletter, issue 126, December 2016
     
    Welcome to the December 2016 edition of the ADSHG newsletter. This issue has positive news about drug developments on the horizon for 2017 as well as a report of our attendance at the recent Society for Endocrinology conference. Additionally, we feature several personal stories about the highs and lows of steroid-dependence.
     
    In this issue:
     
    Page 1: Good news for the new year
    It's subscription time
     
    Page 2: From the President
    About the money
     
    Pages 3-5: Recent drug news
    Infacort low dose hydrocortisone gets closer to launch
    Uncertainty over future access to EMA-licensed new drugs
    ADSHG represented at the the Scottish Medicines Consortium hearing on Plenadren
     
    Pages 6-7: UK news
    ADSHG at the endocrine conference
    ADSHG autumn medical seminar: Shoreham-by-Sea
     
    Page 8: ADSHG news
    Welcome to our new ambulance awareness coordinator
    Wibbly, wobbly, webby
     
    Pages 8-11: Personal stories
    Marty Clarke, Gaelic dream team football player
    My lactose-free hydrocortisone journey
    Conquering the London marathon
     
    Pages 12-13: Fundraising update
     
    Pages 14-15: Social corner
    Gill's social corner
    2016/17 social and medical meetings
     
    Page 16: The back page
    Reminders
    2017 subscriptions

    604 downloads

    Updated

  16. Free

    ADSHG Newsletter 125 - September 2016

    Addison's Disease Self Help Group newsletter, issue 125, September 2016
     
    Welcome to the September 2016 edition of the ADSHG newsletter. After what has been an eventful few months for the country, this issue is packed full with news from our members and supporters on initiatives to support better care for people with Addison’s. This issue of the newsletter also contained a Christmas shop order form insert, highlighting items available to purchase from our online shop.
     
    In this issue:
     
    Page 1: Our community of supporters
    With this issue
    Chinese emergency treatment translations
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    Campaign to add steroids for Addison's to Critical Medicines List
    ADSHG submission to the Scottish Medicines Consortium on Plenadren
     
    Page 4: UK news
    Brexit - what are the implications?
     
    Page 5: Life skills
    Coping with ... telling family and friends
    Prevention is better than cure - get a flu vaccination this winter
    ADSHG Twitter Chat raises awareness
    Register your Addison's with your local ambulance trust
     
    Page 6: Research news
    Uncovering the purpose of the CYP21A1P pseudogene
     
    Pages 7-9: ADSHG AGM and annual report
    A social and informative day out
    Treasurer's report
    Publications and media team report
     
    Page 10: Personal stories
    Kate Granger - #hellomynameis
     
    Page 11: Personal experience
    On the move with Addison's
     
    Pages 12-13: Fundraising update
     
    Pages 14-15: Social corner
    Gill's social corner
    2016 social and medical meetings
     
    Page 16: The back page
    Reminders
    2016 subscription rate

    612 downloads

    Updated

  17. Free

    ADSHG Newsletter 124 - June 2016

    Addison's Disease Self Help Group newsletter, issue 124, June 2016
     
    Welcome to the June 2016 edition of the ADSHG newsletter. This issue is packed full of news about some surprising recent drug developments, some positive ambulance news, the forthcoming relaunch of our main website, recent marathon triumphs of our fundraising runners, and some riveting personal travel stories. In this issue:
     
    Page 1: Making the most of the summer holidays
    New in the ADSHG shop
    In this issue
     
    Page 2: From the President
    About the money
    Emergency injection videos
     
    Page 3: Medications update
    Lactose-free hydrocortisone
    Fludrocortisone out of the fridge!
    New round hydrocortisone
    New pack design, same product
    2.5mg hydrocortisone pellets: not so strong
     
    Pages 4-5: The new look ADSHG website arrives
     
    Page 6: Ambulance news
    Calling 999: hints and tips
     
    Page 7: Conference news
    ADSHG at medical conferences
     
    Pages 8-9: Travel with Addison's
    Holiday season
    You can never be too sure
    Rare Disease Day: raising awareness of Addison's
     
    Pages 10-12: Personal experience
    A sky-high crisis
    The doctor's view...
    Fulfilling a dream: running the London marathon
     
    Pages 12-13: Fundraising
     
    Pages 14-15: Social corner
    Gill's social corner
    2016 social and medical meetings
     
    Page 16: The back page
    Reminders
    2016 subscription rate

    720 downloads

    Updated

  18. Free

    ADSHG Newsletter 123 - March 2016

    Addison's Disease Self Help Group newsletter, issue 123, March 2016
     
    Welcome to the spring 2016 issue of the ADSHG newsletter. This issue is packed with riveting personal stories, all with a happy ending. In this issue:
     
    Page 1: Springing into spring
    Video launch
    Marathon mission
     
    Page 2: From the President
    About the money
    Meet the new clinical panel
     
    Pages 3–4: Recent drug news
    Fludrocortisone scare
    Hydrocortisone concerns
    Hydrocortisone 2.5mg pellets: are they an alternative?
     
    Pages 4–5: Ambulance news
    Ambulance protocols: Irish success story
    East of England ambulance protocols
     
    Pages 6–9: Personal experience
    ADSHG videos help prepare for emergency injection
    Our first emergency injection experience
    Diagnosis slow: sodium low
    The doctor's viewpoint
     
    Pages 9–10: Around the group
    Hydrocortisone and levothyroxine: double trouble or harmonious duet?
     
    Pages 10–13: Fitness focus
    Land's End to John O'Groats: the long way back to the top
    Capital Marathon Challenge
    Running to success
     
    Pages 13–14: Fundraising
     
    Pages 14–15: Social corner
    Gill's social corner
    2016 social and medical meetings
     
    Page 16: Back page
    Reminders
    2016 subscription rate

    822 downloads

    Updated

  19. Free

    ADSHG Newsletter 122 - December 2015

    Addison's Disease Self Help Group Newsletter, issue 122, December 2015
     
    ​Welcome to the winter 2015 issue of the ADSHG newsletter. This issue celebrates the achievements of our members and their families in 2015, during which they have climbed mountains, swum the ocean and run races on our behalf. In this issue:
     
    Page 1: A box of celebrations at Christmas
    ADSHG schools leaflet now online
    Direct Debit: with this issue
     
    Page 2: From the President
    About the money
     
    Pages 3-5: Mont Blanc special
    Climbing Mont Blanc - with Addison's and Bessie Bear
    High altitude climbing with Addison's - the practicalities
     
    Pages 6-7: Conference report
    ADSHG at the Edinburgh Endocrine Conference 2015
    Feedback from volunteers on our stand
    ADSHG posters
     
    Pages 8-9: Around the group
    Edinburgh seminar: observations from the floor
    Register with your ambulance trust
    Remember your flu vaccine
    Send a card this Christmas
    Wibbly, Wobbly, Webby
    Pulses study update
     
    Pages 10-12: Personal experience
    Bangkok life: nothing like an early start
    European odyssey
    Have a very restful Christmas
    Donations report
     
    Pages 12-15: Social corner
    Margaret's social corner
    Addison's Ireland meeting: Limerick
    Hospital meeting a huge success
    Social and medical meetings
     
    Page 16: Back page
    Reminders
    2016 subscription rates
     
    This issue of the newsletter also contained a special fundraising insert highlighting our members' and supporters' fundraising achievements throughout 2015.

    504 downloads

    Updated

  20. Free

    ADSHG fundraising special - December 2015

    This special insert to the ADSHG December 2015 newsletter highlights the wonderful fundraising achievements of our members and supporters throughout the year.
     
    It includes:

    ADSHG at the Great Runs: Great North Run and Great South Run Dragonera open sea swim Tameside's got talent ... in aid of ADSHG Ian's fundraising update

    34 downloads

    Updated

  21. Free

    ADSHG Newsletter 121 - September 2015

    Addison's Disease Self Help Group newsletter, issue 121, September 2015
     
    Welcome to the autumn 2015 newsletter. This issue starts with a controversial topic: on page 3, we respond to recent claims from The Times columnist Tanya Byron about the psychological health of people with Addison’s. Perhaps because she has only a passing familiarity with the effects of high-dose prednisolone, Prof Byron seems unaware of the difference between the side effects from therapeutic steroid doses that may be more than ten times higher than replacement, and the restorative, life-saving benefits of replacement hydrocortisone.
     
    Page 1: Front page
    Because steroids are for life
    Mistaken media views on Addison's
    Efcortesol update
     
    Page 2: From the President
    About the money
     
    Page 3: In the media
    Media comments on adrenal insufficiency and mental health: the ADSHG viewpoint
     
    Pages 4-5: Personal experience
    Nathan Gafuik: Crisis in Moscow
    Happy to inject!
     
    Page 6: Irish news
    Addison's Ireland news
    ADSHG at European Congress of Endocrinology
     
    Pages 7-9: ADSHG Annual Report 2014
    Chair's report to the AGM
    A day in the capital
    Treasurer's report
    Publications & media team report
     
    Pages 10-11: Around the group
    What's new with flu?
    Join our letter writing campaign
    Alfred Potter memorial medical research award
    Update: out-of-date Medic Exempt fines
    Are you red flagged?
    Pharmacy labels
     
    Page 12: Personal experience
    Why feedback to ambulance trusts is important: my experience
    Paramedics: the frontline perspective
     
    Page 13: Fundraising reports
    Ian's £undraising update
     
    Pages 14-15: Social reports
    Jan's social corner
    Wibbly Wobbly Webby
    2015 social & medical meetings
     
    Page 16: Back page
    Reminders
    2015 subscription rates

    90 downloads

    Updated

  22. Free

    ADSHG Newsletter 120 - June 2015

    Addison's Disease Self Help Group newsletter, issue 120, June 2015
     
    Welcome to the summer 2015 newsletter. This issue takes an optimistic punt on the British weather – or our members’ overseas travel plans – and is packed full with hot weather and travel advice. You can find out how expert traveller Nathan Gafuik, the Canadian gymnast with Addison’s, handles long haul flights when he travels to international competitions, on page 5. And you can discover how ADSHG trustee Andrew is adapting to life in colourful, crowded, humid Bangkok. Ex-pat ADSHG member Yvonne explains how she survives in the searing Australian summers.
     
    Page 1: Front page
    Will this be the barbecue summer?
    Direct debit paper mandates
    Thai and Arabic emergency treatment translations
     
    Page 2: From the President
    About the money
     
    Page 3: ADSHG video appeal
    Self-stabbing for beginners: a how-to guide
    Further Efcortesol delay
     
    Pages 4-7: Travel with Addison's
    Handling the heat at home and abroad
    Nathan Gafuik: travelling the world
    Bangkok life
    Ten tip on how to manage your Addison's while on the road in Thailand
    Thailand travel tips: the doctor's view
    Holiday reminders
     
    Pages 8-9: Nursing awareness
    Addison's on the Northumbria curriculum
     
    Pages 10-11: Around the group
    Have you fallen off the list?
    Ambulance registration in the south west
    Genetic research: give blood
    Never Events framework 2015
    The true cost of prescriptions
    Is your Medic Exempt still valid?
     
    Page 12: Personal experience
    Our first emergency injection
     
    Page 13: Fundraising reports
    Ian's £undraising bit
    Wibbly Wobbly Webby
     
    Pages 14-15: Social reports
    Jan's social corner
    2015 social & medical meetings
     
    Page 16: Back page
    Reminders
    2015 subscription rates

    122 downloads

    Updated

  23. Free

    ADSHG Newsletter 119 - March 2015

    Addison's Disease Self Help Group, issue 119, March 2015
     
    Welcome to the spring 2015 newsletter. Lifestyle and exercise are the hot new topics in this issue. Canadian gymnast Nathan Gafuik, who has Addison’s and took part in the recent Glasgow Commonwealth Games, shares his favourite foods with us. So does he ever do McDonald’s? Find out for yourself on page 5.
     
    Page 1: Front page
    New year, new you?
    Subscription rises 2015
    New medical research appeal
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    Efcortesol shortage: the latest
     
    Page 4: ADSHG membership questionnaire
    Questionnaire results
     
    Pages 5-6: Living well
    Nathan Gafuik: my approach to diet and nutrition
    Exercise, cortisol and me...
     
    Page 7: Clinical trials
    Volunteers wanted for the Pulses study
     
    Pages 8-9: Around the group
    Bad drug interactions
    Join our letter writing campaign
    Is your name still on the list?
    Steroid education evenings in Oxford
     
    Pages 10-11: Personal experience
    Being a parent to a child with Addison's
     
    Page 11-13: ALD and Addison's
     
    Page 13: Fundraising report
    Ian's £undraising update
     
    Pages 14-15: Social report
    Jan's social corner
    2015 social & medical meetings
     
    Page 16: Back page
    Reminders
    2015 subscription rates

    94 downloads

    Updated

  24. Free

    ADSHG Newsletter 118 - December 2014

    Addison's Disease Self Help group newsletter, issue 118, December 2014
     
    Welcome to the winter 2014 newsletter. There is good news and bad news in this issue. The bad news is about the shortage of injectable liquid hydrocortisone – Efcortesol – as you can read on page 3. The rest of the newsletter is more positive, beginning with a diary exclusive from Nathan Gafuik, the 29-year old with Addison’s who led the Canadian gymnastics team at the Glasgow Commonwealth Games this summer.
     
    Page 1: Front page
    ...and a healthy new year
    Subscription rises 2015
     
    Page 2: From the President
    About the money
     
    Page 3: Recent drug news
    Efcortesol shortage
     
    Pages 4-5: Personal experience
    Glasgow Commonwealth Games: Nathan Gafuik diary exclusive
     
    Pages 6-9: 2014 AGM
    Chair's welcome
    Observations from the floor
    Treasurer's report
    Facebook report
    Member's feedback
     
    Pages 10-11: Around the group
    NHS hospital safety consultation
    Volunteers needed: endocrine conferences 2015
    Nursing awareness: your help needed
    CAH is Us hosts London seminar
     
    Page 12: More drug news
    Prednisolone pricing controversy continues
     
    Pages 13-15: Social reports
    Jan's social corner
    2015 social meetings
     
    Page 16: Back page
    Reminders
    Subscription rates

    57 downloads

    Updated

  25. Free

    ADSHG Newsletter 117 - September 2014

    Addison's Disease Self Help Group newsletter, issue 117, September 2014
     
    Welcome to the autumn 2015 newsletter. The AGM and medical lecture on 1 November will be our ADSHG “party” to celebrate 30 successful years as a support group for people with Addison’s and their families. This November also marks the 10th anniversary of our accreditation, as a charity formally registered with the Charity Commission. We will be celebrating that important milestone, too. There will be cake and balloons to go with the sandwich lunch at 1pm, which will be followed at 2pm by the 12th annual general meeting and 13th medical lecture of the ADSHG.
     
    Page 1: Front page
    Come to the party on 1 November
    With this issue
    Tell your friends: Great South Run 2014
     
    Page 2: From the President
    About the money
     
    Pages 3-4: Recent drug news
    Spotlight on Diurnal
    Prednisolone pricing controversy
     
    Page 5: Medical news
    Making hospital visits safer
     
    Page 6: Life skills
    Coping with fear of hospitals
     
    Page 7: Personal experience
    Bad bugs strike again
     
    Pages 8-9: Around the group
    Red flags for the ambo
    What's new with flu
    Care.data concerns: update
    Nursing awareness: Staffordshire replies
     
    Pages 10-11: Meeting reports
    EU nurses conference: Wroclaw
    Spain: a dream come true
     
    Page 12: Personal experience
    Google gives the diagnosis
     
    Pages 12-13: Fundraising reports
    Ian's £undraising bit
     
    Pages 13-15: Social reports
    Jan's social corner
    2014 social meetings
     
    Page 16: Back page
    Subscriptions
    Reminders

    64 downloads

    Updated


  • Reading & printing publications

    Our downloadable publications are designed for easy on screen reading, simple home printing and accommodate vision impairment needs.

    ADSHG-home-print_articles.png

    Purchasing publications

    Full colour, commercial print quality publications are available to purchase from the online shop

    ADSHG-shop_icon_article.png

×
×
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue.