ADSHG Magazine - Summer 2022 1.0.0

Welcome to the Summer edition of the ADSHG magazine. We are very lucky to have to all our amazing volunteers who've worked tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our magazine aims to keep you up-to-date with the latest news and developments from across the Addison’s community.

TABLE OF CONTENTS

p2 Editor’s note/Deana

p3 Tribute - Katherine White

p4/5 Addison’s Disease Day 2022

p6/7 Autoimmune Polyglandular Syndrome p8 Meet the Volunteer Jackie Lees

p8/9 Sharps into venues

p10/11 Personal Experience: Anna Power

p12 Children and Young Adults

p13 From the Forum

p14 England Rare Diseases Action Plan

p15 Ireland update

p17 Ambulance update

p18/19 Personal Experience: Sarah Mather

p20 Research update: Royal College of General Practitioners

p21 Research update: University of London

p22 Meet the Trustee: Lisa Shepherd

p22 Simba PPI Adrenal

p22/23 ADSHG sponsor medical students for ECE 2022

p23 ‘Patient’s Voice’ at ECE 2022

p24 SfE Endocrine Nurse update 2022

p25 Dislike splitting tablets?

p26/27 Personal Experience: Giulia Bould

p28/29 Thank you for fundraising

p30 Donate while you shop p30 Gifts and Wills

p31 Addison’s admin!

p32 #ShareYourKit

p33 Future Trustees

p34 Meet the Designer: Anne Doggett

p35 The A team: Who’s who in the ADSHG