-
Most publications are free to download or can be purchased in a hospital pack from the online shop. You can help support the charity and development of new publications for those with Addison's disease by making a donation now.
Newsletters (members only)
Member-only newsletters published quarterly with features and articles about living with Addison's and group news.
69 files
-
Free
ADSHG Newsletter 120 - June 2015
By ADSHG
Addison's Disease Self Help Group newsletter, issue 120, June 2015
Welcome to the summer 2015 newsletter. This issue takes an optimistic punt on the British weather – or our members’ overseas travel plans – and is packed full with hot weather and travel advice. You can find out how expert traveller Nathan Gafuik, the Canadian gymnast with Addison’s, handles long haul flights when he travels to international competitions, on page 5. And you can discover how ADSHG trustee Andrew is adapting to life in colourful, crowded, humid Bangkok. Ex-pat ADSHG member Yvonne explains how she survives in the searing Australian summers.
Page 1: Front page
Will this be the barbecue summer?
Direct debit paper mandates
Thai and Arabic emergency treatment translations
Page 2: From the President
About the money
Page 3: ADSHG video appeal
Self-stabbing for beginners: a how-to guide
Further Efcortesol delay
Pages 4-7: Travel with Addison's
Handling the heat at home and abroad
Nathan Gafuik: travelling the world
Bangkok life
Ten tip on how to manage your Addison's while on the road in Thailand
Thailand travel tips: the doctor's view
Holiday reminders
Pages 8-9: Nursing awareness
Addison's on the Northumbria curriculum
Pages 10-11: Around the group
Have you fallen off the list?
Ambulance registration in the south west
Genetic research: give blood
Never Events framework 2015
The true cost of prescriptions
Is your Medic Exempt still valid?
Page 12: Personal experience
Our first emergency injection
Page 13: Fundraising reports
Ian's £undraising bit
Wibbly Wobbly Webby
Pages 14-15: Social reports
Jan's social corner
2015 social & medical meetings
Page 16: Back page
Reminders
2015 subscription rates
124 downloads
Updated
-
Free
ADSHG Newsletter 119 - March 2015
By ADSHG
Addison's Disease Self Help Group, issue 119, March 2015
Welcome to the spring 2015 newsletter. Lifestyle and exercise are the hot new topics in this issue. Canadian gymnast Nathan Gafuik, who has Addison’s and took part in the recent Glasgow Commonwealth Games, shares his favourite foods with us. So does he ever do McDonald’s? Find out for yourself on page 5.
Page 1: Front page
New year, new you?
Subscription rises 2015
New medical research appeal
Page 2: From the President
About the money
Page 3: Recent drug news
Efcortesol shortage: the latest
Page 4: ADSHG membership questionnaire
Questionnaire results
Pages 5-6: Living well
Nathan Gafuik: my approach to diet and nutrition
Exercise, cortisol and me...
Page 7: Clinical trials
Volunteers wanted for the Pulses study
Pages 8-9: Around the group
Bad drug interactions
Join our letter writing campaign
Is your name still on the list?
Steroid education evenings in Oxford
Pages 10-11: Personal experience
Being a parent to a child with Addison's
Page 11-13: ALD and Addison's
Page 13: Fundraising report
Ian's £undraising update
Pages 14-15: Social report
Jan's social corner
2015 social & medical meetings
Page 16: Back page
Reminders
2015 subscription rates
95 downloads
Updated
-
Free
ADSHG Newsletter 118 - December 2014
By ADSHG
Addison's Disease Self Help group newsletter, issue 118, December 2014
Welcome to the winter 2014 newsletter. There is good news and bad news in this issue. The bad news is about the shortage of injectable liquid hydrocortisone – Efcortesol – as you can read on page 3. The rest of the newsletter is more positive, beginning with a diary exclusive from Nathan Gafuik, the 29-year old with Addison’s who led the Canadian gymnastics team at the Glasgow Commonwealth Games this summer.
Page 1: Front page
...and a healthy new year
Subscription rises 2015
Page 2: From the President
About the money
Page 3: Recent drug news
Efcortesol shortage
Pages 4-5: Personal experience
Glasgow Commonwealth Games: Nathan Gafuik diary exclusive
Pages 6-9: 2014 AGM
Chair's welcome
Observations from the floor
Treasurer's report
Facebook report
Member's feedback
Pages 10-11: Around the group
NHS hospital safety consultation
Volunteers needed: endocrine conferences 2015
Nursing awareness: your help needed
CAH is Us hosts London seminar
Page 12: More drug news
Prednisolone pricing controversy continues
Pages 13-15: Social reports
Jan's social corner
2015 social meetings
Page 16: Back page
Reminders
Subscription rates
60 downloads
Updated
-
Free
ADSHG Newsletter 117 - September 2014
By ADSHG
Addison's Disease Self Help Group newsletter, issue 117, September 2014
Welcome to the autumn 2015 newsletter. The AGM and medical lecture on 1 November will be our ADSHG “party” to celebrate 30 successful years as a support group for people with Addison’s and their families. This November also marks the 10th anniversary of our accreditation, as a charity formally registered with the Charity Commission. We will be celebrating that important milestone, too. There will be cake and balloons to go with the sandwich lunch at 1pm, which will be followed at 2pm by the 12th annual general meeting and 13th medical lecture of the ADSHG.
Page 1: Front page
Come to the party on 1 November
With this issue
Tell your friends: Great South Run 2014
Page 2: From the President
About the money
Pages 3-4: Recent drug news
Spotlight on Diurnal
Prednisolone pricing controversy
Page 5: Medical news
Making hospital visits safer
Page 6: Life skills
Coping with fear of hospitals
Page 7: Personal experience
Bad bugs strike again
Pages 8-9: Around the group
Red flags for the ambo
What's new with flu
Care.data concerns: update
Nursing awareness: Staffordshire replies
Pages 10-11: Meeting reports
EU nurses conference: Wroclaw
Spain: a dream come true
Page 12: Personal experience
Google gives the diagnosis
Pages 12-13: Fundraising reports
Ian's £undraising bit
Pages 13-15: Social reports
Jan's social corner
2014 social meetings
Page 16: Back page
Subscriptions
Reminders
64 downloads
Updated
-
Free
ADSHG Newsletter 116 - June 2014
By ADSHG
Addison's Disease Self Help Group newsletter, issue 116, June 2014
Welcome to the summer 2014 newsletter. This autumn marks our 30th anniversary, and we will be duly celebrating with cake and balloons at the 1 November AGM and medical lecture. The ADSHG wears its history with pride, and can boast an impressive growth from humble beginnings, as you can read in the President’s column on page 2. We will be toasting Deana, our founder and President
– and the future success of her little group – on 1 November at the AGM.
Page 1: Front page
Celebrating the big 3-0
Help shape the next 30 years: give us your views
Page 2: From the President
About the money
Page 3: Recent drug news
New generic 100mg hydrocortisone
Promising developments with Chronocort
Pages 4-5: Recent news
Medical jewellery: there is an alternative
Pages 6-7: Around the group
Nursing awareness: good news from Wales
Ambulance update
Pages 8-9: Conference news
Endocrine conference Liverpool 2014
Steroid education: key to success
Pages 10-12: Personal experience
Stabbing the President
Kuwait calling: on the drip
Letter to my grandson
Page 13: Fundraising news
Ian's £undraising update
Pages 13-15: Social reports
Jan's social corner
2014 social meetings
Page 16: Back page
Subscriptions
Reminders
55 downloads
Updated
-
Free
ADSHG Newsletter 115 - March 2014
By ADSHG
Addison's Disease Self Help Group newsletter, issue 115, March 2014
Welcome to the spring 2014 newsletter. The ADSHG turns 30 in autumn this year, marking the auspicious season when Deana Kenward, our President, began contacting everyone who had responded to her little “ad” in the Radio Times. This autumn it will also be 10 years since the ADSHG’s application was approved by the Charity Commission and we became a registered charity. We have come a long way in those three decades and have a lot to celebrate.
Page 1: Front page
Happy birthday to us!
VanishPoint syringe on sale now
Page 2: From the President
About the money
Pages 3-6: Recent news
Emergencies r us: more from our 2013 survey
Stabbing practice at work
Pages 7-8: Life skills
A perspective on anxiety
Page 9: Medical research
Pulses - the rhythm of life?
Pages 10-11: Personal experience
Taking on the world: triathlon training for beginners
The healthiest sick guy you know
Page 12: Exercise and Addison's
The doctor's view
Page 13: Fundraising reports
Ian's £undraising update
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
71 downloads
Updated
-
Free
ADSHG Newsletter 114 - December 2013
By ADSHG
Addison's Disease Self Help Group newsletter, issue 114, December 2013
Welcome to the winter 2013 newsletter. This issue explores the ways that people with Addison’s around the world have chosen to celebrate life post-diagnosis. Rachel in Eire, Andrew in Spain, an Ian and Sarah in the UK, and Geoff in Australia, describe some of the ways they have marked their diagnosis and recovery, many through sporting or recreational achievements. Jane explains in her page 7 column on coping with stress how she, too, determined to see the positives in her diagnosis and put it to good use in her life.
Page 1: Front page
Welcome to the winter newsletter
New year = renew subscription time
Employers leaflet
Page 2: From the President
About the money
Pages 3-4: Recent news
Ambulance awareness: advances in Ireland
New medical paper on good clinical practice
Pages 5-6: Medical awareness
Nursing awareness raising
Hospital awareness: Arran's first crisis
Page 7: Life skills
Reducing the stress of a long term condition
Pages 8-10: Personal experience
The Great Fjord & Shannon swims
Santiago pilgrim trail
St Crispin's day nightride in verse
Page 11: Famous lives
Geoff Starling - from exhilaration to despair and back again
Page 12: Around the group
Leicester medical seminar
Page 13: Fundraising report
Ian's £undraising update
Pages 14-15: Social report
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
32 downloads
Updated
-
Free
ADSHG Newsletter 113 - September 2013
By ADSHG
Addison's Disease Self Help Group newsletter, issue 113, September 2013
Welcome to the autumn 2013 newsletter. This issue features some of the early findings from our online emergency questionnaire. As you will see, we are aiming to share the survey findings with health practitioners and policy makers, in a constructive dialogue to help our members manage their steroid-dependence as well as possible.
Page 1: Front page
Emergencies "r" us
Christmas order form
Online emergency survey
Page 2: From the President
About the money
Pages 3-4: Recent news
All about us: emergency survey findings
Pages 5-7: Medical awareness raising
Running out of steroid medication: the doctor's view
Ambulance awareness update
Recent drug news: Chronocort
Letter writing for nursing awareness
Page 8: Life skills
Coping with the trauma of crisis
Pages 8-9: Personal experience
My hospital crisis
My hospital crisis: the doctor's view
Page 10: Famous lives
Sabino Arano
Pages 11-12: Personal experience
My gap year goes astray
Page 13: Fundraising report
Ian's £undraising report
Pages 14-15: Social report
Jan's social corner
Future social meetings
Page 16: Back page
Reminders
Subscriptions
62 downloads
Updated
-
Free
ADSHG Newsletter 112 - June 2013
By ADSHG
Addison's Disease Self Help Group newsletter, issue 112, June 2013
The most important message in this issue is here on the front page: we want everyone to participate in our emergency survey! In a new venture for the group, the questionnaire is a web-based format, using software provided by SurveyMonkey. This has the advantages of being much cheaper than a printed questionnaire, and means we get instant updates on the running totals as more people log in to take part.
Page 1: Front page
Listening to our members: emergency survey
Online emergency survey
Page 2: From the President
About the money
Pages 3-4: Recent news
About the emergency survey
Ambulance registration: why it's important
News from Dublin
Problems with NHS emergency care: is it a crisis?
London ambulance invites us in
Pages 5-6: Medical awareness raising
ADSHG at the Harrogate endocrine conference
Letter writing for nursing awareness
Pages 7-9: 2013 AGM
Chair's remarks
Treasurer's report
Webmaster's report
Members' feedback
Page 9: Home and away
Specialist endocrine care: BMJ publishes our views
Pages 10-12: Personal experience
Jack's comeback
Ambulance registration: a good news story
Page 13: Fundraising report
Ian's £undraising update
Travelling light
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
83 downloads
Updated
-
Free
ADSHG Newsletter 111 - March 2013
By ADSHG
Addison's Disease Self Help Group, issue 111, March 2013
Welcome to the spring 2013 newsletter. Our members’ Middle East travel and trekking experiences feature large in this issue. Jo Grey writes about her rugged adventure in the Sahara, when she braved 40º heat, sandstorms, flies and the dreaded ‘Sahara tummy’, to trek 120km across the desert last October. Not for the faint-hearted, you can read the nitty-gritty of her epic stroll on pages 10 - 12. Andrew found himself making less progress on the journey home, when his flight to Kuwait became fog-bound and was stranded at the world’s largest airport – Dammam in Saudi Arabia – as he describes on pages 12 – 13.
Page 1: Front page
The journey home
Notes for nurses: hospital advice
Page 2: From the President
About the money
Pages 3-4: Recent news
Addison's life stories published
Pages 4-5: Recent drug news
Hydrocortisone price stays high
Efcortesol availability
Pharmacy labels
Page 6: ADSHG at work
Nursing awareness letters
Ian's £undraising bit
Pages 7-9: Medical lecture
ADSHG medical lecture 2012
Pages 10-13: Personal experience
Maniacs in the Sahara
Kuwait calling: sleepless in Dammam
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
21 downloads
Updated
-
Free
ADSHG Newsletter 110 - December 2012
By ADSHG
Addison's Disease Self Help Group newsletter, issue 110, December 2012
Welcome to the winter issue of the Addison’s newsletter. 2012 was a busy, active year for the group, with plenty happening that we can look back on with satisfaction. On page 2 our President, Deana Kenward, describes her memorable day at Windsor Castle in November, when she was awarded an MBE for her 28 years of dedicated service to the ADSHG. As you will see in the photos, Deana (who ordinarily never smiles for the camera), couldn’t stop smiling all day. Well done, Deana, and richly deserved!
Extra download file included: BMJ - How to avoid precipitating an acute adrenal crisis
Page 1: Front page
We wish you a merry Christmas
Addison crisis: the latest advice
Page 2: From the President
MBE award: my big day out
Pages 3-5: Recent drug news
Rescue of Addison’s disease study
Modified release Plenadren: the latest
Pages 5-6: ADSHG at work
ADSHG at endocrine conferences
Nursing awareness letters
Pages 7-10: 2011 annual report
2011 report and accounts
Pages 10-16: Personal experience
Diamonds are forever: 60 years with Addison’s
Not such a merry Christmas
The doctor’s view
Travelling light
Page 17: Fundraising report
Ian’s fundraising update
Pages 18-19: Social reports
Jan's social corner
Regional meetings
Page 20: Back page
Reminders
Subscriptions
44 downloads
Updated
-
Free
ADSHG Newsletter 109 - September 2012
By ADSHG
Addison's Disease Self Help Group, issue 109, September 2012
Welcome to the autumn 2012 newsletter. This issue features an inspiring interview with the Canadian Olympic gymnast Nathan Gafuik, who represented Canada in the recent London Olympic Games. Now aged 27, Nathan was diagnosed with Addison’s some 12 years ago, aged 15. During the Olympic Games, he met our journalist member Jane, to talk to her about how he manages the combined challenges of his Addison’s and high level gymnastic competitions. You can read about Nathan’s remarkable courage and self-discipline on page 3.
Page 1: Front page
Our Addison's heroes
With this issue: Christmas order form
Page 2: From the President
About the money
Pages 3-4: Personal experience
Olympic gymnast with Addison's
Pages 5-6: Recent news
What's new with flu?
Nursing awareness raising
Members' perspective
Pages 7-8: AGM reports
Remarks from the Chair
Treasurer's report
President's address
Pages 9-10: Personal experience
Kuwait calling: from New York
The nurse's view
Page 11: Recent drug news
Fludrocortisone storage instructions
Page 12: Home and away
Travelling light
Page 13: Fundraising update
Ian's fundraising bit
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
30 downloads
Updated
-
Free
ADSHG Newsletter 108 - June 2012
By ADSHG
Addison's Disease Self Help Group newsletter, issue 108, June 2012
Welcome to the summer 2012 newsletter.This issue features articles from two doctors, on some important aspects of our medication management. Dr Kristian Lovas of Bergen Medical School Norway, explains the implications of his research team’s recent fi ndings about how grapefruit juice and liquorice alter the influence of our hydrocortisone tablets on page 3. Then on page 11, Dr Rob Andrews of Bristol Medical School responds to the dilemmas posed by Andrew in Kuwait calling, where he describes the combined challenges of extreme heat and stress.
Page 1: Front page
Good stress, bad stress
With this issue
Page 2: From the President
About the money
Pages 3-4: Recent drug and research news
What is it about grapefruit juice and liquorice?
Once a day Plenadren: the latest news
Letter writing for nursing awarenss
Pages 5-9: Medical meetings
British Endocrine Societies conference report
Pages 10-12: Personal experience
Kuwait calling: heat+stress+
Travelling light
Nearly new baby
Page 13: Fundraising update
Ian's fundraising bit
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
57 downloads
Updated
-
Free
ADSHG Newsletter 107 - March 2012
By ADSHG
Addison's Disease Self Help Group newsletter, issue 107, March 2012
Welcome to the spring 2012 newsletter. We hope that some of you have made new year resolutions to improve your fitness and take up running. This is because the ADSHG has purchased 5 charity places in the 2012 Great South Run, taking place in Portsmouth on 28 October. As Ian explains on page 13, this is a flat 10 mile course that should suit the determined novice. If you are willing to do some fundraising on our behalf – and show the world what people with Addison’s can achieve – we would love to hear from you. On page 12, Professor Simon Pearce tells us how he achieved a similar goal in 2011, when he completed the Great North Run for the first time.
Page 1: Front page
Get your running shoes out
Keeping your membership up to date
Page 2: From the President
Membership donations
Pages 3-4: Recent drug news
Once-a-day Plenadren: latest news
Page 5: Recent news
Research news
About the money
Letter writing for nurses
Pages 6-8: Medical lecture
Adrenal crisis and Addison's
Page 9: Ambulance alerts
Phil's bit
A shot in the night
Members' feedback
Page 10: Medical update
Nursing awareness
Medical awareness: pharmacy labels
Pages 11-12: Personal experience
Travelling light
My big run
Page 13: Fundraising report
Ian's fundraising bit
Pages 14-15: Social reports
Jan's social corner
Regional meetings
Page 16: Back page
Reminders
Subscriptions
23 downloads
Updated
-
Free
ADSHG Newsletter 106 - December 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 106, December 2011
Welcome to the winter 2011 newsletter. Recent drug developments make our top stories once again, with announcements that the UK manufacturer of cortisone acetate has pulled out, while the new modified release hydrocortisone product, Plenadren, has gained marketing approval from the European Marketing Authority. On page 3, our medical advisers offer suggestions on what to do if you have been affected by the sudden loss of cortisone acetate.
Page 1: Front page
...and a healthy new year
MP's enquiry into drug shortages
Page 2: From the President
Donations
Pages 3-5: Recent drug news
Cortisone acetate withdrawn from UK
Plenadren gets EMA marketing approval
Irish drug news
Page 5: Recent news
Welcome to our new Treasurer
Pages 6-8: Annual report
Trustees report to Charity Commission
Financial review
Page 9: Fundraising update
Thank yous
Pages 10-11: Around the group
Newcastle seminar
Ambulance alert
Pages 11-14: Personal experience
Thigh high club
My special day
Time for tea with nurses
A heart beat from Paris
Kuwait calling
Travelling light
Pages 15-17: Around the group
Have yourself a merry little Christmas
The web report
Fundraising update
Alfred Potter Memorial Research Award
Pages 18-19: Social update
Jan's social corner
Regional meetings
Page 20: Back page
Reminders
Subscriptions
20 downloads
Updated
-
Free
ADSHG Newsletter 105 - September 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 105, September 2011
Welcome to the autumn 2011 newsletter. Drug news features prominently in this issue. On pages 3 – 4, Jane investigates the views of a number of leading European adrenal specialists on Plenadren, the new modified-release hydrocortisone tablet. We hope you will agree, their responses make fascinating reading.
Page 1: Front page
Keep on running
With this issue...
Page 2: From the President
Members' donations
Pages 3-6: Recent drug news
Modified release hydrocortisone: a mixed response from experts
Irish medication news
Page 6: Recent news
New information from Society for Endocrinology
GP online investigates prescriptions lengths
Pages 7-9: AGM
Chair's remarks
Finance report
Web report
Page 10: Personal experience
A marathon triumph in Edinburgh
Skiing in Norway
Pages 11-14: Around the group
Ambulance alerts
Eyesight problems?
Travelling light
Jan's social corner
The web report
Ian's fundraising update
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
19 downloads
Updated
-
Free
ADSHG Newsletter 104 - June 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 104, June 2011
Welcome to the summer 2011 newsletter, which is packed full of news. The new dual release hydrocortisone being developed by DuoCort is now becoming available in the UK - at a price - as Jane Hodgkin explains on page 3. Medication costs and access to our essential steroid medication also feature on page 4, where we reprint the ADSHG’s recent letter to the British Medical Journal about prescription costs. The ADSHG’s activities in medical awareness-raising are reported on pages 5 and 6, where Alison Mainwaring describes how she represented us at a nursing forum and we report on the annual British Endocrine Societies’ conference in Birmingham.
Page 1: Front page
Being prepared
Medical recognition of our website
With this issue
Page 2: From the President
New bones for old
Pages 3-4: Recent drug news
Dual release hydrocortisone available in UK
28 day prescribing in the news
The pot of gold at the end of the rainbow?
Pages 5-7: Medical update
Royal College of Nursing invites our input
British Endocrine Societies conference
Addison's highlighted at European endocrine conference
Page 8: Around the group
Immunodeficiency study at Oxford
Genetic research: give blood
Pregnancy study
Pages 9-12: Personal experiences
This student life
Blues and twos from the dentist
Ambulance alerts
Travelling light
Pages 13-14: Group news
Jan's social corner
Ian's fundraising bit
Members' donations
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
49 downloads
Updated
-
Free
ADSHG Newsletter 103 - March 2011
By ADSHG
Addison's Disease Self Help Group newsletter, issue 103, March 2011
Welcome to the spring 2011 newsletter. Those among you whose New Year resolution was to improve your fitness or join a gym may take inspiration from James Claxton and Richard Keyzor’s experiences, reported on pages 4 and 5. Richard was never runner before he decided to take on a year-long quest of competitive sporting events, to raise funds for his son Oli’s cystic fibrosis charity. You can read about his triumphs and his setbacks in One Year, One Aim. James confesses that he was under-prepared for the gruelling cycling course he set out on in October – one hundred miles a day for ten days – which took him from Land’s End to John O’Groats. Outstandingly, he made it, although one of his companions did not.
Page 1: Front page
Never give up
What is Addison's
GP awareness
Page 2: From the President
Members' donations
Page 3: Recent drug news
Hydrocortisone prices stay high
Addison's Ireland
Pages 4-5: Personal experience
One year, one aim
100 miles a day
Pages 6-8: Medical news
European Addison's conference
Pregnancy survey
Page 9: Personal experience
Travelling light
Pages 10-12: Real life emergencies
A dangerous delay at the hospital
Ambulance alerts
Pages 13-14: Personal experience
Body ready for the scrapheap, brain ready for Mastermind
Page 14: Around the group
Les says: fundraising update
Alfred Potter Memorial Research Award
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
16 downloads
Updated
-
Free
ADSHG Newsletter 102 - December 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 102, December 2010
Welcome to the winter 2010 newsletter. We have some encouraging news in this issue, as medical professional colleges and ambulance trusts show their recognition of our emergency treatment needs and identify various ways in which they can support us. As we report, below, we are re-issuing our laminated emergency card with ‘badging’ from the Colleges of Emergency Medicine and Paramedics. Then, on page 6 you can read about the Welsh Ambulance approach to adrenal crisis and the steps they are taking to ensure all their crews are acquainted with our rare condition.
Page 1: Front page
And a healthy new year
New red card
GP care leaflet
Page 2: From the President
Members' donations
Pages 3-4: Recent drug news
New DuoCort drug moves closer to production
Adixon - a success story
Repeat prescriptions
UK hydrocortisone price stays high
Pages 5-6: Medical news
Impact at the endocrine conferences
Responding to adrenal crisis: Welsh ambulance perspective
Pages 7-12: Personal experience
Delayed treatment at A&E
Phil's bit: ambulance alert
A Christmas story: my journey into Addison's
Thigh high club: a Moroccan study
Travelling light
Pages 13-14: Group news
Jan's social corner
Les says: fundraising update
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
27 downloads
Updated
-
Free
ADSHG Newsletter 101 - September 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 101, September 2010
Welcome to the autumn 2010 newsletter. We have some good news to announce, highlighted here on page 1, in the support we are receiving from the College of Emergency Medicine. The college has generously offered to endorse our emergency treatment instructions, by allowing its official logo to be printed on our red emergency card. This badging should help to ensure that our needs are given immediate recognition by Accident & Emergency staff in future.
Page 1: Front page
Waving the red card
Endorsement from College of Emergency Medicine
Page 2: From the President
Members' donations
Alfred Potter Memorial Research Award
Pages 3-4: Recent drug news
Hydrocortisone price increase
Prescription medication: who pays what?
Alternatives to hydrocortisone?
Page 5: Personal experience
The Fred Whitton challenge
Pages 6-8: AGM
Social report
Minutes
Chair's remarks
Treasurer's report
Webmaster's report
Pages 9-12: Medical lecture
Should everyone with Addison's be taking DHEA?
Pages 13-14: In memory
An untimely death
Pages 14-15: Medical news
Media misrepresentation
DuoCort update
Feedback on GP leaflets
Pages 16-17: Personal experience
Thigh high club: a Cornish experience
Travelling light
Page 18: Around the group
Les says: fundraising update
Page 19: Social update
Regional meetings
Page 20: Back page
Reminders
15 downloads
Updated
-
Free
ADSHG Newsletter 100 - June 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 100, June 2010
Welcome to the summer 2010 newsletter. This issue is, first and foremost, about celebrating the achievements of our athletes. Three of our members – all with Addison’s – completed marathons in April, and we are so proud of them. You can read their stories on pages 3 – 5. This issue is also about recognising the achievements of the endocrine nurses who work to support people with Addison’s. You can read about the two nurses who won the ADSHG’s research awards at the March endocrine conference on pages 7 - 8.
Page 1: Front page
Our athletes, our heroes
Cordon acquired by Auden Mckenzie
Page 2: From the President
A beautiful wedding
Members' donations
Pages 3-5: Fundraising update
Peter's Brighton story
Debra's London story
Greg's London story
Pages 6-8: Medical news
Vitamin D deficiency
ADSHG nursing award at endocrine conference
Group education and steroid sick day rules
Pages 8-10: Recent research
Ongoing symptoms in Addison's
Bone loss in Addison's
Responding to adrenal crisis: ambulance perspective
Pages 11-12: Famous lives
George Summerbee
Page 13: Personal experience
Travelling light
Page 14: Around the group
Les says: fundraising update
Social meeting reports
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
20 downloads
Updated
-
Free
ADSHG Newsletter 099 - March 2010
By ADSHG
Addison's Disease Self Help Group newsletter, issue 99, March 2010
Welcome to the March 2010 newsletter. The UK had an unusually cold, hard winter; when the spring weather fi nally arrives it will be most welcome. So spare a thought for our competitive runners and cyclist, who have had to continue their training regimes right through the sleet, ice and snow. The London marathon is on 25 April and the ADSHG is proud to have two members with Addison’s who will be taking part in it: Debra Chase and Greg Davis. In addition, group member Ian Carswell will be taking on one of the UK’s toughest competitive cycling routes when he takes part in the Fred Whitton Challenge in the Lake District in May. You can find out more on page 14.
Page 1: Front page
Supporting our athletes
GP information packs
Efcortesol shortage
Page 2: From our President
Members' donations
Obituary: Alfred Potter
Page 3: Famous lives
Jane Austen had TB not Addison's
Pages 4-5: Recent news
What's new with flu?
ADSHG trustee meeting
French fludrocortisone
Page 6: Medical meetings
ADSHG offer nursing awards
Page 7: Recent research
Recent research on adrenal emergencies
Page 8: Famous lives
Ella Holleufer Hedtoft
Pages 9-13: Personal experience
Travelling light
An unhappy hospital stay
Machu Picchu
Up and running
Exercise and Addison's: the doctor's view
Page 14: Around the group
Les says: fundraising update
Social meeting reports
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
31 downloads
Updated
-
Free
ADSHG Newsletter 098 - December 2009
By ADSHG
Addison's Disease Self Help Group newsletter, issue 98, December 2009
Welcome to the December 2009 newsletter, the final newsletter in our 25th anniversary year. To mark the passing of this special year, we are giving everyone a Silver Jubilee gift pack, enclosed with this newsletter. Our 25th anniversary celebrations, held in Guildford on 31 October, feature on pages 9 and 10, with Chris Scott and Daniel Kenward’s recollections of the early days of the group.
Page 1: Front page
Happy Christmas everyone
Silver Jubilee gift pack
Page 2: From the President
Group news
Pages 3-5: Medical updates
What's new with flu?
Modified release hydrocortisone: promising developments
Nordic conference news
Pages 6-7: Group news
Sister awarded for saving mother
'I want to see a consultant'
Travelling light
Pages 8-9: 25th anniversary meeting
Speeches from the meeting
Page 10: Medical report
Oral contraceptive pills: a word of caution
Renin tests - what do they mean?
Page 11-12: Personal experience
Helen Reddy: the woman I am now
Page 12: Famous lives
Eunice Kennedy Shriver
Pages 13-14: Around the group
Les says: fundraising update
Social meeting reports
Members' donations
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
25 downloads
Updated
-
Free
ADSHG Newsletter 097 - September 2009
By ADSHG
Addison's Disease Self Help Group, issue 97, September 2009
Welcome to the autumn 2009 newsletter. It has been a busy summer for the trustees, as you can read in this issue. We have worked with the Society for Endocrinology to help their Clinical Committee prepare the information about H1N1 flu preparedness that is enclosed with this newsletter. We have written to the British Medical Journal about Addison’s awareness and the important role played by GPs in the early diagnosis of our condition. Our letter is reprinted on page 5. And we have been preparing our new range of Addison’s awareness gifts and stationery, along with enhancements to our Just Giving donations and fundraising pages, as you can read on page 8.
Page 1: Front page
Working with our medics
Flu update
Christmas cards
Page 2: From the President
Group news update
Page 3-5: Recent news
Patients taking hydrocortisone need longer prescriptions in light of flu pandemic
New fludrocortisone - out of the fridge
'I want to see the consultant'
Prescription charges
Addison's in the medical press
Page 6-7: AGM
Minutes
Chair's remarks
Treasurer's report
Page 8: Group news
Les says: fundraising update
The shop
Life in the slow lane
Pages 9-12: Medical lecture
Replacement therapy in Addison's disease
Pages 13-14: Medical update
Spotlight on Manchester: NWAS and hospital experience
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
15 downloads
Updated
-
Free
ADSHG Newsletter 096 - June 2009
By ADSHG
Addison's Disease Self Help Group, issue 96, June 2009
Welcome to the summer 2009 newsletter. We make no apologies for the sober tone of this issue, which is all about emergencies. Two of the four horsemen of the apocalypse – pestilence and death – feature on these pages. Pestilence, in the guise of Mexican flu, appears on page 3, where we have some important news about the anticipated flu outbreaks in autumn 2009 and how to make sure we are all as well prepared as possible. Death, very sadly, appears on page 11 where we publish the autopsy report on a lady with a pituitary condition (not an ADSHG member) who died in her sleep, when she could not absorb oral steroids during a gastric infection. If she had been given injected steroids and prompt medical treatment, it is likely that this tragedy could have been prevented.
Page 1: Front page
All about emergencies
With this issue
Efcortesol shortage
Page 2: From the President
Members' fundraising
Pages 3-5: Medical news
A message from John Wass on flu preparedness
28-day prescribing in the news
Addison's in the medical press
Page 6: AGM
Social report
Pages 7-8: ADSHG poster
All about emergencies
Pages 9-10: Personal experience
My life turned upside down
Page 11: Recent news
A preventable tragedy
Pages 12-13: Home and away
News from Denmark
Casa Luz calling
Life in the slow lane
Pages 14-15: Social update
Social meeting reports
Regional meetings
Page 16: Back page
Reminders
18 downloads
Updated
-
Reading & printing publications
Our downloadable publications are designed for easy on screen reading, simple home printing and accommodate vision impairment needs.
Purchasing publications
Full colour, commercial print quality publications are available to purchase from the online shop
