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ADSHG Magazine - Winter 2021 1.0.0

Vick Smith

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About This File

Welcome to the Winter edition of the ADSHG magazine. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s and adrenal insufficiency community.


In this edition:

Page 2.    Editor’s note/Deana

Page 3 & 17. Confused about drug shortages?

Page 4/5.  COVID-19 Update

Page 6/7.  HSJ Awards

Page 8/9.  Feelings about COVID freedoms

Page 10.  Children and Young Adults: Meet Becca

Page 11.  Ireland update

Page 12/13.  Ambulance update

Page 13.  Paramedic Zooms

Page 14   Drug news: Fludrocortisone

Page 15.  Drug news: NICE guidelines

Page 15. European Adrenal Network Conference

Page 16. Bringing down generic drug prices

Page 18/19.  Personal Experience: Ali’s story

Page 20/21. Personal Experience: Lynsey’s story

Page 22. Meet the Trustee: Philip Kaye

Page 22/23. ADSHG research update

Page 24/25. Research surveys

Page 26.  SfE BES Conference

Page 27. Annette Louise Seal Memorial Award

Page 28/29.  Funding special: London Marathon

Page 30/31.  Funding special: Great South Run

Page 32/33.  Funding special: Thank Yous

Page 34. Social meetings: Updates

Page 35. Fundraising: Donate while you shop

Page 35. Gifts and Wills

Page 36/37. Meet the Christmas Card Designers

Page 38. Addison’s admin!

Page 39.  #ShareYourKit

Page 40.  View from our Treasurer

Page 40. Message from our Chair

Page 41 . Future Trustees

Page 42.  Meet the Designer: Charlotte

Page 43. The A team: Who’s who in the ADSHG

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