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Most publications are free to download or can be purchased in a hospital pack from the online shop. You can help support the charity and development of new publications for those with Addison's disease by making a donation now.
Newsletters (members only)
Member-only newsletters published quarterly with features and articles about living with Addison's and group news.
69 files
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Free
ADSHG Newsletter 095 - March 2009
By ADSHG
Addison's Disease Self Help Group, issue 95, March 2009
The ADSHG turns 25 this year, making this our silver anniversary. On 21 July 1984, Deana Kenward started the group - at her kitchen table - with just a handful of members. She blames writer and actress Katie Boyle, then the agony aunt at the Radio Times, for everything. Deana had written to the Radio Times to ask if they knew of a support group for people with Addison’s. Katie Boyle wrote back to say no, and why didn’t she start one? So she did.
Page 1: Front page
Happy birthday to us
Annual report
Page 2: From the President
Annette Louise Seal Memorial Research Award
Members' fundraising
Pages 3-5: Medical news
Pandemic flu planning
Government's position on 28-day prescribing
Duo-Cort online survey
Page 5: Group news
Executive at work
Pages 6-9: Medical lecture
The causes of Addison's
Pages 10-11: Home and away
Keeping cool about fludrocortisone
Genetic research: give blood
Rescue of Addison's Disease Study
Life in the slow lane
Page 12: Personal experience
Namaste: trekking in the Himalayas
Page 13: Famous lives
JFK
Page 14: Group news
Medical lecturer profile
Social reports
Page 15: Social update
Regional meetings
Page 16: Back page
Reminders
24 downloads
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ADSHG Newsletter 094 - December 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 94, December 2008
When the US sub-prime real estate market collapsed a year ago, no one anticipated that it would unravel to cause a global fi nancial crisis, the near-collapse of the international banking system and a protracted worldwide recession. Despite the economic uncertainty ahead, we hope that everyone can enjoy their Christmas and New Year celebrations.
Page 1: Front page
Happy Christmas everyone
2009 subscriptions now due
Page 2: From the President
Members' fundraising
28-day prescriptions success story
Pages 3-5: Medical news
Influenza vaccine
Generic Efcortesol update
Modified hydrocortisone release: study update
ADSHG at Clinical Update
ADSHG at nurses conference
Newcastle medical seminar
Life in the slow lane
Pages 6-8: Media
Medical misinformation: Women's Own and PCC
PCC decision
Page 9: Famous lives
Andrew Dasburg
Pages 10-11: Around the group
Seeing in the new year
Regional meetings
Page 12: Back page
Reminders
9 downloads
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ADSHG Newsletter 093 - September 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 93, September 2008
It was the Irish dramatist Brendan Behan who said, there is no such thing as bad publicity except your own obituary. However, that was in a gentler, more deferential era. In this issue, two of our members – Tracy and Jackie – tell us about their experiences with the media and how their diagnosis stories were reported. As you will see on page 3, Tracy was delighted to fi nd her experiences accurately and carefully portrayed, while Jackie was dismayed to fi nd the opposite. On page 4 you can read the guidelines the ADSHG trustees have recently developed for working with the media in future, to try and prevent misreporting of Addison’s disease and the kind of distress Jackie was put through by misrepresentation of her life.
Page 1: Front page
Giving people with Addison's a voice
Russian translation now available
Oval hydrocortisone is back
Page 2: From the President
Members' fundraising
Obituary: Alan Lack
Pages 3-4: Media
Media misinformation: the saga of Women's Own
Working with the media
Pages 4-5: Recent news
The puncture sisters
Meeting reports
Pages 5-6: AGM
AGM report
Chair's remarks
Minutes
Page 7: Medical update
ADSHG submission to the Darzi report
Page 8: Home and away
News from down under
Thigh high club
Page 9: Personal experience
Remembering Mabel
On watch with Addison's
Page 10: Around the group
Name that ailment
Members' news
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
6 downloads
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ADSHG Newsletter 092 - June 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 92, June 2008
Welcome to the June issue. Drug issues are in the news again this summer with both good and bad news. The good news, on page 4, is that there are promising developments with the two new modified release hydrocortisone products now going through clinical trials. The bad news is that hydrocortisone and fludrocortisone supply problems have again hit parts of the UK. Please check the emergency supply procedures on the back page of the newsletter.
Page 1: Front page
Good news and bad news
Florinef and hydrocortisone shortages
Page 2: From the President
Members' fundraising
Pages 3-4: Recent news
Repeat prescribing for essential steroid medication
BES endocrine conference
Modified release hydrocortisone: good news
Pages 5-8: Medical update
Adrenal emergency regular event for Addison's patients
Employment and Addison's
All about food
Claire's weight loss story
Page 9: Personal experience
A guider's tale
Famous lives: Helen Reddy
Page 10: Around the group
Diary of a persistent patient
Crossword
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
16 downloads
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ADSHG Newsletter 091 - March 2008
By ADSHG
Addison's Disease Self Help Group newsletter, issue 91, March 2008
Recent months have been eventful ones for the ADSHG, so that this issue of the newsletter is more topical than usual. We found ourselves in discussions with a major drug company, Bristol-Myers Squibb, about the revised storage instructions for their fl udrocortisone acetate product, Florinef, and the lack of clarity regarding how long the tablets are viable out of the fridge. On page 6, the acting medical director of Bristol-Myers Squibb offers an explanation of the regulatory requirements behind the current situation. On page 7, Kerry Wheeler, the editor of the Australian Addison’s newsletter, describes the Australian experience with the new, white Florinef.
Page 1: Front page
Drug supply issues: Florinef and hydrocortisone
Page 2: From the President
Members' fundraising
Pages 3-4: Recent news
German translation works
Are you having a problem getting hydrocortisone?
Corlan shortage
ADSHG at endocrine conference
Page 4: Media
Addison's in the news
Pages 5-6: Medical update
Florinef goes white in the cold
Pages 7-9: Personal experience
News from down under
A soldier's tale
Famous lives: JFK
Page 10: Around the group
Profile: Professor Simon Pearce
AGM notice
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
11 downloads
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ADSHG Newsletter 090 - December 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 90, December 2007
Welcome to the December 2007 newsletter. Christmas can be a time of high expectations in many households – and possibly some added tensions. So in this issue, our page 5 feature considers the topic of stress: how the body and brain process stress and whether stressful events need extra medication (or not). We also provide some light-hearted tips for how to survive Christmas and, in the page 10 recipe, a deliciously indulgent alternative to the traditional Christmas pudding.
Page 1: Front page
We wish you a merry Christmas
The little red card
Fludrocortisone update
Page 2: From the President
Members' fundraising
Pages 3-4: Recent news
Twice-daily fludrocortisone
Threat to DHEA supplies
Infusion pump hydrocortisone
Ambulance update
Pages 5-6: Medical update
What is stress?
How to handle stress
Pages 6-9: Personal experience
Have a very restful little Christmas
Thigh high club: Christmas Eve at A&E
A sculptor's tale
Famous lives: Eugene Shoemaker
Members' feedback
Page 10: Around the group
Crossword
Cake recipe
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders
56 downloads
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ADSHG Newsletter 04 web - October 2004
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 4, October 2004
As the group moves towards achieving charitable status, we are also establishing and developing some very positive links with medical practitioners and other members of healthcare services.
Page 1: Front page
Group update
Page 2: Medical update
London ambulance conference presentation
Pages 3-5: Personal experience
Jackie's story
The doctor's view
Pages 5-8: Medical lecture
Managing your steroid medication
13 downloads
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ADSHG Newsletter 03 web - April 2004
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 3, April 2004
It is hard to believe that the first webnewsletter was launched a full year ago. Yet much has happened within the group in the last twelve months. We have made significant progress towards achieving charitable status. Many of us have benefited from the “refresher” emergency injection sessions and, as part of our continuing emphasis on emergency management procedures, there is a step-by-step guide to administering an injection of Solu-Cortef, following on from the Efcortesol instructions (web newsletter 2), on pages 4 and 5.
Page 1: Front page
Group update
Page 2: Group news
The editorial team
Website statistics
Pages 3-4: Personal story
Julie's story
Page 5: Medical lecture
The patient - consultant relationship
Page 6: Around the group
Penpal scheme
Page 7: Media update
Letter to The Guardian
Page 8: Addison's information
What to do in an emergency
ADSHG email group
19 downloads
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ADSHG Newsletter 02 web - October 2003
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 2, October 2003
Welcome to the second edition of the ADSHG web newsletter! In response to the continuing high level of interest in the emergency injection procedure, we hope that the step-by-step guide to administering the injection will be a helpful reference to anyone unsure of what to do. Research Nurse Suzanne Curran’s demonstration at the AGM and annual lecture on 10th May was a great success and this kind of supervised session is a real confidence booster, proving that we can all do it if we know how.
Page 1: Front page
Group news
Pages 2-3: Medical information
How to give an emergency injection of Efcortesol
Pages 4-7: Personal experience
Pam's story
The doctor's view
The ambulance service view
Alan's story
Page 8: Media
Letter to The Lancet
7 downloads
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ADSHG Newsletter 01 web - February 2003
By ADSHG
Addison's Disease Self Help Group web newsletter, issue 1, February 2003
Welcome to the first edition of the ADSHG web newsletter. It is intended to complement the bi-monthly newsletter and will be printed twice a year as part of your membership subscription, with the next edition scheduled for October 2003.
Page 1: Front page
Group update
Page 2: Group news
The editorial team
Website statistics
Pages 3-4: Personal story
Julie's story
Page 5: Medical lecture
The patient - consultant relationship
Page 6: Around the group
Penpal scheme
Page 7: Media update
Letter to The Guardian
Page 8: Addison's information
What to do in an emergency
ADSHG email group
9 downloads
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ADSHG Newsletter 089 - September 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 89, September 2007
Welcome to the autumn 2007 newsletter. This issue is packed with news about medication management that we hope you find both interesting and relevant.
Page 1: Front page
Keep on top of your tablets
GP leaflet
Page 2: From the President
Members' fundraising
Members' news
Hydrocortisone product trials
Page 3: Recent news
Repeat prescriptions: letter to the British Medical Journal
Langbaurgh PCT: Good prescribing practice
Page 4: Executive at work
AGM minutes and Chair's remarks
Pages 5-8: Medical feature
Trends in the management of Addison's disease: medical lecture
Extra material: Colour lecture presentation slide set extra (PDF in member-only area)
Page 9: Personal experience
The emergency translation works
A cutting experience
Page 10: Around the group
Profile: Guildford speakers
Potato rosti
The crossword
Rural ramblings
Page 11: Notices
Social meetings update
Page 12: Back page
Reminders
14 downloads
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ADSHG Newsletter 088 - June 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 88, June 2007
Welcome to the summer 2007 edition of the ADSHG newsletter. We have prepared this issue in anticipation of another long, hot summer such as we experienced in 2006.
Page 1: Front page
Have a good holiday - whatever the weather
PC gremlins
Portuguese translation of emergency card
Page 2: From the President
Members' fundraising
Members' news
A sky high reward
Page 3: Recent news
One-dose hydrocortisone
Euradrenal research project proposed
Research volunteers wanted, Cambridge
Page 4: Executive at work
Repeat prescriptions
ADSHG represented @ Birmingham
A day at the seaside
Pages 5-6: Medical feature
Preventing and treating adrenal emergencies
Page 7: Personal experience
IM injection: is there a better way?
Heat exhaustion
Page 8: The doctor's view
Managing hot weather
Page 9: Personal experience
Hot weather tips
Rural ramblings
Page 10: Around the group
Spicy kedgeree
The crossword
Page 11: Notices
Social meetings update
Page 12: Back page
Reminders
17 downloads
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ADSHG Newsletter 087 - March 2007
By ADSHG
Addison's Disease Self Help Group newsletter, issue 87, March 2007
Welcome to the spring 2007 edition of the ADSHG newsletter. Spring is the time when the trustees are looking forward – both to the start of summertime and to the events of the year ahead – and back at our activities over the previous 12 months. This issue contains a four page supplement with the group’s Annual Report to the Charity Commission, outlining our activities in 2006. We hope you agree that we had some pleasing achievements in 2006, notably in raising medical awareness of our needs.
Page 1: Front page
Greater medical interest in Addison's disease
Standing orders
Annual report
Page 2: From the President
Members’ fundraising
Members’ news
Profile: Professor John Monson
Page 3: Recent news
One-dose hydrocortisone
Hydrocortisone supply problems
Genetic origins of Addison’s: update
Pages 4-5: Medical feature
Professor John Wass’ address to the 2006 endocrinology summer school
Page 6: Executive at work
Insurance and placebo trials
Emergency survey update
2007 AGM agenda and notice of meeting
Pages 7-10: 2006 Annual Report
A four page supplement
Pages 11-13: Personal experience
Return to work: occupational health and disability discrimination
Page 14: Around the group
Healthy banana cake
The crossword
E-forum update
Page 15: Notices
2007 AGM and medical lecture
2007 subscription rates
Genetic research: how to give blood
Autumn medical seminar
Page 16: Back page
Reminders
11 downloads
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ADSHG Newsletter 086 - December 2006
By ADSHG
Addison's Disease Self Help Group newsletter, issue 86, December 2006
Welcome to the December newsletter. Like us, you probably can't believe how quickly the year has gone. Nearly Christmas already! The last three months have been a busy time for the trustees and group volunteers. Deana Kenward and Alan Lack have been industrious in printing, packaging and posting all the Christmas card orders. Deana has been incredibly efficient, sometimes getting orders out within 48 hours of receiving them via the website.
Page 1: Front page
Wishing you the happiest of Christmases
2007 membership options
Page 2: From the President
Members' fundraising
Members' news
Page 3: Recent news
Birmingham medical seminar
Website online registration and membership renewal
ADSHG e-Forum
Page 4: Executive at work
Day curves - are they worth it?
ADSHG at medical conferences
Pages 5-8: Medical lecture
The ABCs of Addison's
Page 9: Personal experience
A cycling tour de force
Bad drug experience
Extreme sports
Page 10: Around the group
Deana's apple pie
Crossword
Page 11: Notices
Subscriptions
Give blood: medical research
Page 12: Back page
Reminders
9 downloads
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ADSHG Newsletter 085 - September 2006
By ADSHG
Addison's Disease Self Help Group newsletter, issue 85, September 2006
Welcome to the autumn newsletter for the ADSHG. We hope you all enjoyed a relaxing summer holiday. Some of our members are great travellers, as you will see from the travel insurance tips on page 10 of this issue. You were no doubt aware of the heightened security and more stringent bag searches at UK airports this summer. It is still important to carry your medication and injection kit with you on the plane rather than check them as hold baggage (as specified in the Managing Addison’s leaflet you received with your June newsletter).
Page 1: Front page
Travelling safely with your essential steroid medication
Emergency mini-survey
Christmas order form
Page 2: From the President
Members' fundraising
Members' news
Page 3: Recent news
ADSHG at UK medical conferences
Manchester medical seminar
Genetic research: how to give blood
Page 4: Executive at work
AGM minutes
Chair's remarks
Pages 5-8: Medical lecture
Sex and Addison's: how adrenal insufficiency affects men and women differently
Page 9: Personal experience
Our youngest member
Our oldest member
Page 10: Around the group
Travel insurance tips
Aunty Teresa's soda bread
Recent medical research
Page 11: Notices
Meetings update
Emergency card extra copies
Page 12: Back page
Reminders
19 downloads
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ADSHG Newsletter 084 - June 2006
By ADSHG
Addison's Disease Self Help Group newsletter, issue 84, June 2006
Welcome to the summer newsletter for the ADSHG. Our exciting summer news is the launch of the Addison’s rose, Our Beth, at Chelsea on 22 May. This new rose from Peter Beales Roses is available thanks to a bequest from the Loasby family. Peter Beales Roses are making 10% of all sales proceeds available to the ADSHG in memory of their staff member, Beth Loasby, who had Addison’s and diabetes. We hope the gardeners among you will find a corner somewhere for this lovely rose, which will be available mail order from autumn 2006, as you can read on page 3.
Page 1: Front page
The Addison's rose: a wonderful gift
Information leaflet
Page 2: From the President
Members' fundraising
Page 3: Recent news
The Addison's rose: our Beth
The surgical guidelines work
Genetic research: give blood
Page 4: Executive at work
ADSHG at Glasgow medical conference
London medical lecture: the sports report
Pages 5-7: Medical update
Profile: Dr Simon Pearce
Will my children inherit my Addison's?
Everything you wanted to know about Addison's
Pages 8-10: Personal experience
Running with Addison's
Ironman competition in Canada
The doctor's view
Page 10: Around the group
Meeting reports
Injection kit cases
Page 11: Notices
Regional meetings
Medical seminars
Page 12: Back page
Reminders
11 downloads
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ADSHG Newsletter 083 - March 2006
By ADSHG
Addison's Disease Self Help Group newsletter, issue 83, March 2006
Welcome to the spring 2006 newsletter for the ADSHG. The year got off to a promising start for everyone with Addison’s, when we heard that our submission to the English ambulance regulatory body had been accepted. You may find it surprising, but at present, ambulance crews in many parts of the country do not carry hydrocortisone and those who do, are not permitted to administer it for the prevention of adrenal crisis. This is a reflection of the rarity of our condition - in the past those drawing up the regulations for ambulance crews and paramedics had overlooked our needs. However, the situation will gradually improve from April 2006 onwards, as you can read on page 4 of this newsletter.
Page 1: Front page
Promise of better emergency paramedical treatment in future
ADSHG poster
Page 2: From the President
Members' fundraising
Pages 3-9: Medical update
The emergency card works
Emergency ambulance injections
Addison's with a bump
Thigh high club
Profile: Dr Wiebke Arlt
Pages 10-14: AGM
AGM agenda
Annual report 2005
Accounts 2005
Page 15: Notices
Regional meetings
Medical meetings
Page 16: Back page
Reminders
12 downloads
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ADSHG Newsletter 082 - December 2005
By ADSHG
Addison's Disease Self Help Group newsletter, issue 82, December 2005
Welcome to our final newsletter for 2005. This has been a year of exciting developments for the group, which has seen several important projects come to fruition - most of which have been in the making for more than 12 months.
Page 1: Front page
Promoting better medical understanding of Addison's
Surgical guidelines
Page 2: From the President
Christmas wishes to all
Members’ fundraising
Page 3: Recent news
Guilford medical seminar
US NORD gives recognition
Page 4: About the executive
Message from a member
Trustees and their responsibilities
Pages 5-7 Medical feature
Addenbrookes seminar: Why are Addison’s patients difficult?
Pages 8-9: Personal experience
Hospital medication errors
The doctor's view
Page 10: Around the group
Our Christmas card artists
Research snippets
Page 11: Notices
Medical lecture 2006
Call for trustees
Regional meetings
2006 subscription rates
Page 12: Back page
Reminders
7 downloads
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ADSHG Newsletter 081 - September 2005
By ADSHG
Addison's Disease Self Help Group newsletter, issue 81, September 2005
Welcome to the 81st issue of the ADSHG newsletter. This is the first of our new-look newsletters and combines the regular print newsletter with our webnewsletter. It will be published four times a year, in September, December, March and June.
Page 1: Front page
Ensure you don't run out of essential steroid medication
ADSHG emergency card
Page 2: From the President
Making friends across the ADSHG
Regional reports
Page 3: Recent news
Fludrocortisone shortage continues
Genetic research into the hereditory basis of Addison’s
Page 4: Executive at work
Our letter to Primary Care Trusts about medication needs
Pages 5-8: Medical feature
Professor John Wass’s 2005 lecture to the ADSHG
Page 9: Around the group
How the fludrocortisone shortage has affected us
Member’s news
Page 10: Personal experience
What it means to be an ‘Expert Patient’
Page 11: Notices
Medical seminar and regional meetings for 2005
Medical lecture 2006
2006 subscription rates
BMJ reviews our website
Page 12: Back page
Reminders
10 downloads
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Reading & printing publications
Our downloadable publications are designed for easy on screen reading, simple home printing and accommodate vision impairment needs.
Purchasing publications
Full colour, commercial print quality publications are available to purchase from the online shop
