About this Publication
Addison's Disease Self Help Group newsletter, issue 93, September 2008
It was the Irish dramatist Brendan Behan who said, there is no such thing as bad publicity except your own obituary. However, that was in a gentler, more deferential era. In this issue, two of our members – Tracy and Jackie – tell us about their experiences with the media and how their diagnosis stories were reported. As you will see on page 3, Tracy was delighted to fi nd her experiences accurately and carefully portrayed, while Jackie was dismayed to fi nd the opposite. On page 4 you can read the guidelines the ADSHG trustees have recently developed for working with the media in future, to try and prevent misreporting of Addison’s disease and the kind of distress Jackie was put through by misrepresentation of her life.
Page 1: Front page
Giving people with Addison's a voice
Russian translation now available
Oval hydrocortisone is back
Page 2: From the President
Members' fundraising
Obituary: Alan Lack
Pages 3-4: Media
Media misinformation: the saga of Women's Own
Working with the media
Pages 4-5: Recent news
The puncture sisters
Meeting reports
Pages 5-6: AGM
AGM report
Chair's remarks
Minutes
Page 7: Medical update
ADSHG submission to the Darzi report
Page 8: Home and away
News from down under
Thigh high club
Page 9: Personal experience
Remembering Mabel
On watch with Addison's
Page 10: Around the group
Name that ailment
Members' news
Page 11: Social update
Regional meetings
Page 12: Back page
Reminders