About this Publication
Welcome to the Winter edition of the ADSHG magazine. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s and adrenal insufficiency community.
In this edition:
Page 2. Editor’s note/Deana
Page 3 & 17. Confused about drug shortages?
Page 4/5. COVID-19 Update
Page 6/7. HSJ Awards
Page 8/9. Feelings about COVID freedoms
Page 10. Children and Young Adults: Meet Becca
Page 11. Ireland update
Page 12/13. Ambulance update
Page 13. Paramedic Zooms
Page 14 Drug news: Fludrocortisone
Page 15. Drug news: NICE guidelines
Page 15. European Adrenal Network Conference
Page 16. Bringing down generic drug prices
Page 18/19. Personal Experience: Ali’s story
Page 20/21. Personal Experience: Lynsey’s story
Page 22. Meet the Trustee: Philip Kaye
Page 22/23. ADSHG research update
Page 24/25. Research surveys
Page 26. SfE BES Conference
Page 27. Annette Louise Seal Memorial Award
Page 28/29. Funding special: London Marathon
Page 30/31. Funding special: Great South Run
Page 32/33. Funding special: Thank Yous
Page 34. Social meetings: Updates
Page 35. Fundraising: Donate while you shop
Page 35. Gifts and Wills
Page 36/37. Meet the Christmas Card Designers
Page 38. Addison’s admin!
Page 39. #ShareYourKit
Page 40. View from our Treasurer
Page 40. Message from our Chair
Page 41 . Future Trustees
Page 42. Meet the Designer: Charlotte
Page 43. The A team: Who’s who in the ADSHG