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Addison's Disease Self-Help Group

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About this Publication

This ADSHG leaflet, Managing Addison's disease, has been developed for the ADSHG by our Clinical Advisory Panel. It provides a summary of the key points everyone with Addison's needs to know to manage their health. It is designed primarily to assist those who have been recently diagnosed and is ideal for hospitals and endocrinology units to give to their patients with Addison's.


The leaflet covers the following information:

  1. What is Addison's disease?
  2. How is Addison's disease diagnosed?
  3. How is Addison's disease treated?
  4. What do I need to know about managing my medication?
  5. Are there any special precautions I will need to take?
  6. What could go wrong if I don't take enough medication?
  7. What kind of medical support and monitoring will I need?
  8. What kind of quality of life can I expect?
  9. Can I have children?
  10. What about sport and exercise?
  11. Are there any long-term side effects from my medication?
  12. Why is it called Addison's disease?

The Addison’s Clinical Advisory Panel (ACAP) is a group of endocrinologists with an interest in adrenal medicine. It advises the ADSHG on medical matters. This leaflet has been authored by: Prof John Wass Churchill Hospital, Oxford, Dr Trevor Howlett Leicester Royal Infirmary, Prof Wiebke Arlt University Hospital, Birmingham Prof Simon Pearce Royal Victoria Infirmary, Newcastle Prof John Monson St Bartholomew’s Hospital, London.

The leaflet is © ADSHG May 2014. It may be copied for personal use or by medical practitioners for the education of their patients. Otherwise it should not be reproduced without written permission of the ADSHG.

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