Useful links to other organisations

UK groups for associated autoimmune conditions and other causes of steroid-dependence

Achalasia Research UK

Alopecia UK

ALD Life (Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN))

AMEND - Association for Multiple Endocrine Neoplasia Disorders)

Asthma UK

British Sjogren's Syndrome Association

British Thyroid Foundation

Coeliac UK

Crohn's and Colitis UK

Diabetes UK

Hypopara UK (Parathyroid)

Living with CAH (Congenital adrenal hyperplasia)

National Rheumatoid Arthritis Society
Pernicious Anaemia Society
The Pituitary Foundation
The Vitiligo Society

National and international umbrella support groups

United Kingdom
ADSHG is a member of the following umbrella/sector charities

National Council of Voluntary Organisations (NCVO)

National Voices (UK)

Rare Diseases UK

Overseas
Belgium

Rare Disorders Belgium (RDB)

Croatia

Croatian Human Resources (HSRB)

Ireland

Genetic and Rare Disorders Organisation Ireland (GORDI)

India

Organisation for Rare Diseases India (ORDI)

United States of America

US National Organisation for Rare Diseases (NORD)

US National Institute of Diabetes, Digestive and Kidney diseases patient information leaflet

Affiliations

The Society for Endocrinology supports a number of endocrine-related charities, many of which are listed above. The ADSHG is grateful for the coordination and assistance it provides. It also maintains a public information website, You and your hormones, which has a range of educational materials.

Overseas Addison's support groups

Many of the national support groups websites listed below are in languages other than English. Online translators can offer you a rough and ready English language version of these screen-based texts. The most readily available is Google Translate and there are others.

Australia