Addison’s disease (hypoadrenalism or adrenal insufficiency) is a rare, potentially fatal condition where the adrenal glands cease to function. People with Addison’s disease require life-long, daily treatment with replacement steroid hormones.
The Addison’s Disease Self-Help Group, with the support and guidance of its Clinical Advisory Panel, publishes education materials for people with Addison's and their medical teams regarding the treatment and management of Addison's and other types of adrenal insufficiency. We try to make all our educational materials available for free download on our website at https://www.addisonsdisease.org.uk/Pages/Category/publications, subject to copyright.
In this section we feature real-life experiences of emergencies, by our members who describe how they coped with severe illnesses or accidents. In addition, we often ask a medical adviser to the ADSHG to comment on the experiences of our members, and where necessary, to offer suggestions as to what the individual might have done differently.
The ADSHG has made a number of submissions towards Department of Health consultation exercises on patient safety, access to medications and and good clinical care. Here, we present the main submissions that the charity has made since its 2004 charitable accreditation.
Addison's is a rare condition, so that there are only a few prominent citizens, past or present, who have been diagnosed with it. In its members' newsletter, the ADSHG has published feature stories about the achievements of those exceptional individuals with Addison's who have come to our attention. Here is a small selection of those Famous Lives stories.
The ADSHG is very lucky to have some wonderful supporters to take part in a whole range of activities to raise money to support our work. In this section, our fundraisers share their stories and provide inspiration for ideas on how you can support the ADSHG.
The Addison’s Disease Self-Help Group (ADSHG) is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families. First started in 1984, the Group is now a registered charity (no.1106791) governed by a body of elected trustees, which works to support its members with adrenal failure and to promote better medical understanding of this rare condition.
Addison's Ireland is the Irish branch of the Addison’s Disease Self-Help Group (ADSHG) with approximately 104 members from around the country both north and south. It organises regular meetings in Dublin and around the country and works to raise awareness of Addison's in Ireland.
Addison's disease is a rare condition, little known to the general public, that receives only occasional media attention. In this media section, we provide resources, explain how we assist media enquiries where we can, and list the ADSHG's past press releases.