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  1. vsmith ADSHG Ops Manager

    ADSHG Magazine 137 - Summer 2020

    Version 1.0.0

    287 downloads

    Welcome to the Summer edition of the ADSHG newsletter. We are very lucky to have to all our amazing volunteers who've worked tirelessly in this time of COVID-19 to support and promote the ADSHG. In conjunction with our website and social media platforms our magazine aims to keep you up-to-date with the latest news and developments from across the Addison’s community.
    Free
  2. vsmith ADSHG Ops Manager

    ADSHG Newsletter 136 - Winter 2019

    Version 1.0.0

    72 downloads

    Welcome to the Winter edition of the ADSHG newsletter. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s community.
    Free
  3. Version 1.0.0

    489 downloads

    Welcome to the Spring edition of the ADSHG newsletter. We are exceedingly grateful to all our amazing volunteers who work tirelessly to support and promote the ADSHG. In conjunction with our website and social media platforms our newsletter aims to keep you up-to-date with the latest news and developments from across the Addison’s community. Behind the scenes the ADSHG has been working hard to gain a better understanding of the challenges members sometimes face in gaining safe, effective care. As a result, we are delighted to introduce new member benefits in this edition and some c
    Free
  4. Version 1.0.0

    612 downloads

    Addison's Disease Self-Help Group Newsletter 134, December 2018 Our latest members' newsletter is available for download. It's 24 pages packed with news, views and advice from the Addison's community - to the Addison's community. Page 2 : Introduction to the Social Media Team A note from the Editor Page 3 : Hello, my name is... Chris Pointon explains how his wife's experiences of palliative care drove this initiative Page 4 : Introduction to the new CEO Message from the Chair, Andrew Glass MBE Page 5 : Report from the G
    Free
  5. 524 downloads

    Addison's Disease Self-Help Group newsletter, issue 133, September 2018 Welcome to the autumn 2018 edition of the ADSHG newsletter, with a refreshed, modern design. This new-look edition gives details of the forthcoming Special General Meeting and medical seminar, with messages from our Founder, the new Chair and the Treasurer. This issue also includes information on the prices of generic medicines and updates from ADSHG medical grant recipients. Additionally, Jane Hodgkins offers members helpful advice on how to reduce psychological stress and we report on ambulance awareness, fundra
    Free
  6. 700 downloads

    Addison's Disease Self-Help Group newsletter, issue 132, June 2018 Welcome to the summer 2018 edition of the ADSHG newsletter. This issue has a special travel and holidays feature with lots of helpful tips and reminders for making the most of your holidays, including guidance about the EHIC. Friends and ADSHG members pay tribute to former trustee Sue Chambers, who sadly ended her struggle with leukemia at Easter. Following the introduction of the GDPR in May, learn how we are protecting your data and how you can check and update your accounts details online. Additionally, we report on
    Free
  7. Version 1.0.0

    679 downloads

    Addison's Disease Self-Help Group newsletter, issue 131, March 2018 Welcome to the spring 2018 edition of the ADSHG newsletter. This issue contains exciting drug news on a new hydrocortisone formulation for children and a comprehensive Brexit update. Whether you are looking to get fit or already participating in a sport, Dr Rob Andrews offers lots of instructive advice about staying on top of an exercise programme with Addison's, while Jane Hodgkin reveals how words and phrases we use influence our moods and outlook. Recent medical research news, an ambulance update, fundraising stories,
    Free
  8. Version 1.0.0

    631 downloads

    Addison's Disease Self Help Group newsletter, issue 130, December 2017 Welcome to the winter 2017 edition of the ADSHG newsletter. This issue is bursting at the seams with news - essential drug updates, work on ambulance awareness and conference reports from members, as well as members' personal stories, fundraising updates and meeting dates. We wish all our members a very Happy Christmas and a healthy New Year! Page 1: Happy New Year 2018, everyone! 2018 subscription rise Online adrenal questionnaire now live Page 2: From the President Ab
    Free
  9. 644 downloads

    Addison’s Disease Self Help Group newsletter, issue 129, September 2017 Welcome to the autumn 2017 edition of the ADSHG newsletter. This issue announces the arrival of the Addison’s cookery book, a enticing collection of healthy recipes compiled by Sue Chambers, with the story of how it came together. Our central feature reflects on June’s successful and enjoyable annual general meeting and medical lecture. Additionally, we report on the latest drug news, ambulance awareness and the ADSHG medical research grant, as well as the launch of the upgraded website. This issue
    Free
  10. 621 downloads

    Addison's Disease Self Help Group newsletter, issue 128, June 2017 Welcome to the summer 2017 edition of the ADSHG newsletter. This issue reports promising developments towards the new Zeneo autoinject device. We have more positive news on A&E awareness in Ireland and a report from Dr Anna Mitchell on her ongoing genetic analyses. In addition, we focus on the website updates to Living well and the launch of our injection videos on YouTube. In this issue Page 1: Planning your summer get-away? AGM and medical lecture tickets Page 2: From the
    Free
  11. 634 downloads

    Addison's Disease Self Help Group newsletter, issue 127, March 2017 Welcome to the March 2017 edition of the ADSHG newsletter. This issue has exciting news about drug developments on the horizon for this year as well as discussing the potential impacts of Brexit on patients. Additionally, we look at our Group's ongoing efforts to build positive diaglogue with medics in the UK and Ireland and focus on our new website updates. In this issue: Page 1: Get running AGM medical lectures and tickets Page 2: From the President About the money Pages 3-4: Recent drug news New needle-f
    Free
  12. 601 downloads

    Addison's Disease Self Help Group newsletter, issue 126, December 2016 Welcome to the December 2016 edition of the ADSHG newsletter. This issue has positive news about drug developments on the horizon for 2017 as well as a report of our attendance at the recent Society for Endocrinology conference. Additionally, we feature several personal stories about the highs and lows of steroid-dependence. In this issue: Page 1: Good news for the new year It's subscription time Page 2: From the President About the money Pages 3-5: Recent drug news Infacort low dose hydrocortisone gets
    Free
  13. 610 downloads

    Addison's Disease Self Help Group newsletter, issue 125, September 2016 Welcome to the September 2016 edition of the ADSHG newsletter. After what has been an eventful few months for the country, this issue is packed full with news from our members and supporters on initiatives to support better care for people with Addison’s. This issue of the newsletter also contained a Christmas shop order form insert, highlighting items available to purchase from our online shop. In this issue: Page 1: Our community of supporters With this issue Chinese emergency trea
    Free
  14. 716 downloads

    Addison's Disease Self Help Group newsletter, issue 124, June 2016 Welcome to the June 2016 edition of the ADSHG newsletter. This issue is packed full of news about some surprising recent drug developments, some positive ambulance news, the forthcoming relaunch of our main website, recent marathon triumphs of our fundraising runners, and some riveting personal travel stories. In this issue: Page 1: Making the most of the summer holidays New in the ADSHG shop In this issue Page 2: From the President About the money Emergency injection videos Page 3: Medications update Lactose-fr
    Free
  15. 820 downloads

    Addison's Disease Self Help Group newsletter, issue 123, March 2016 Welcome to the spring 2016 issue of the ADSHG newsletter. This issue is packed with riveting personal stories, all with a happy ending. In this issue: Page 1: Springing into spring Video launch Marathon mission Page 2: From the President About the money Meet the new clinical panel Pages 3–4: Recent drug news Fludrocortisone scare Hydrocortisone concerns Hydrocortisone 2.5mg pellets: are they an alternative? Pages 4–5: Ambulance news Ambulance protocols: Irish success story East of England ambulance protocol
    Free
  16. 498 downloads

    Addison's Disease Self Help Group Newsletter, issue 122, December 2015 ​Welcome to the winter 2015 issue of the ADSHG newsletter. This issue celebrates the achievements of our members and their families in 2015, during which they have climbed mountains, swum the ocean and run races on our behalf. In this issue: Page 1: A box of celebrations at Christmas ADSHG schools leaflet now online Direct Debit: with this issue Page 2: From the President About the money Pages 3-5: Mont Blanc special Climbing Mont Blanc - with Addison's and Bessie Bear High altitude climbing with Addison's -
    Free
  17. 120 downloads

    Addison's Disease Self Help Group newsletter, issue 120, June 2015 Welcome to the summer 2015 newsletter. This issue takes an optimistic punt on the British weather – or our members’ overseas travel plans – and is packed full with hot weather and travel advice. You can find out how expert traveller Nathan Gafuik, the Canadian gymnast with Addison’s, handles long haul flights when he travels to international competitions, on page 5. And you can discover how ADSHG trustee Andrew is adapting to life in colourful, crowded, humid Bangkok. Ex-pat ADSHG member Yvonne explains how she survives in
    Free
  18. 56 downloads

    Addison's Disease Self Help group newsletter, issue 118, December 2014 Welcome to the winter 2014 newsletter. There is good news and bad news in this issue. The bad news is about the shortage of injectable liquid hydrocortisone – Efcortesol – as you can read on page 3. The rest of the newsletter is more positive, beginning with a diary exclusive from Nathan Gafuik, the 29-year old with Addison’s who led the Canadian gymnastics team at the Glasgow Commonwealth Games this summer. Page 1: Front page ...and a healthy new year Subscription rises 2015 Page 2: From the President About the
    Free
  19. 62 downloads

    Addison's Disease Self Help Group newsletter, issue 117, September 2014 Welcome to the autumn 2015 newsletter. The AGM and medical lecture on 1 November will be our ADSHG “party” to celebrate 30 successful years as a support group for people with Addison’s and their families. This November also marks the 10th anniversary of our accreditation, as a charity formally registered with the Charity Commission. We will be celebrating that important milestone, too. There will be cake and balloons to go with the sandwich lunch at 1pm, which will be followed at 2pm by the 12th annual general meeting
    Free
  20. 53 downloads

    Addison's Disease Self Help Group newsletter, issue 116, June 2014 Welcome to the summer 2014 newsletter. This autumn marks our 30th anniversary, and we will be duly celebrating with cake and balloons at the 1 November AGM and medical lecture. The ADSHG wears its history with pride, and can boast an impressive growth from humble beginnings, as you can read in the President’s column on page 2. We will be toasting Deana, our founder and President – and the future success of her little group – on 1 November at the AGM. Page 1: Front page Celebrating the big 3-0 Help shape the next 30 year
    Free
  21. 69 downloads

    Addison's Disease Self Help Group newsletter, issue 115, March 2014 Welcome to the spring 2014 newsletter. The ADSHG turns 30 in autumn this year, marking the auspicious season when Deana Kenward, our President, began contacting everyone who had responded to her little “ad” in the Radio Times. This autumn it will also be 10 years since the ADSHG’s application was approved by the Charity Commission and we became a registered charity. We have come a long way in those three decades and have a lot to celebrate. Page 1: Front page Happy birthday to us! VanishPoint syringe on sale now Pa
    Free
  22. 32 downloads

    Addison's Disease Self Help Group newsletter, issue 114, December 2013 Welcome to the winter 2013 newsletter. This issue explores the ways that people with Addison’s around the world have chosen to celebrate life post-diagnosis. Rachel in Eire, Andrew in Spain, an Ian and Sarah in the UK, and Geoff in Australia, describe some of the ways they have marked their diagnosis and recovery, many through sporting or recreational achievements. Jane explains in her page 7 column on coping with stress how she, too, determined to see the positives in her diagnosis and put it to good use in her life.
    Free
  23. 60 downloads

    Addison's Disease Self Help Group newsletter, issue 113, September 2013 Welcome to the autumn 2013 newsletter. This issue features some of the early findings from our online emergency questionnaire. As you will see, we are aiming to share the survey findings with health practitioners and policy makers, in a constructive dialogue to help our members manage their steroid-dependence as well as possible. Page 1: Front page Emergencies "r" us Christmas order form Online emergency survey Page 2: From the President About the money Pages 3-4: Recent news All about us: emergency survey
    Free
  24. 81 downloads

    Addison's Disease Self Help Group newsletter, issue 112, June 2013 The most important message in this issue is here on the front page: we want everyone to participate in our emergency survey! In a new venture for the group, the questionnaire is a web-based format, using software provided by SurveyMonkey. This has the advantages of being much cheaper than a printed questionnaire, and means we get instant updates on the running totals as more people log in to take part. Page 1: Front page Listening to our members: emergency survey Online emergency survey Page 2: From the President Ab
    Free
  25. 19 downloads

    Addison's Disease Self Help Group, issue 111, March 2013 Welcome to the spring 2013 newsletter. Our members’ Middle East travel and trekking experiences feature large in this issue. Jo Grey writes about her rugged adventure in the Sahara, when she braved 40º heat, sandstorms, flies and the dreaded ‘Sahara tummy’, to trek 120km across the desert last October. Not for the faint-hearted, you can read the nitty-gritty of her epic stroll on pages 10 - 12. Andrew found himself making less progress on the journey home, when his flight to Kuwait became fog-bound and was stranded at the world’s lar
    Free
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